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keep on keeping on

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Re: keep on keeping on

Postby SamsLand » Sat Nov 19, 2016 7:09 pm

hi everyone

we were in some protector space in therapy on friday too. And my T was talking about some things but also about how or whether certain parts, or protectors might want other rolls. That their roll was implemented when a need for protection was high. But that when we don't need protecting (and i don't mean not being vigilant) then can the protector have another fulfilling role.

and that even if the protector has done some "bad" things or sabotaged things it was all out of genuine care and even love to protect.

I was listening to this song in the car. We internalize the song, the lyrics and it builds compassion, love and understanding within our system. It started from me to the littles but was returned from the littles to the protectors. This song, like all music, helps us feel things we can think, speak or write.

https://www.youtube.com/watch?v=la0-5QFLr14

While I was driving I thought of you birdsong87 team. I thought of the remarkable strength and compassion you have in your system. And that sometimes while you may not see it or feel it is there. Asti is a big part of this strength.

you are remarkable.
keep ya head up, Don't let up, keep slayin em
-eminem

not sure what the point was.
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Re: keep on keeping on

Postby birdsong87 » Sat Nov 19, 2016 8:51 pm

thank you. i think this is actually helping.
been listening to that song on repeat for... more than an hour...
me and Maya both singing it for Asti.

it seems impossible to her that "we" can be beautiful. maybe we can get there.
we are gteting thru with the "this world drives you crazy". she considers that its not "us" but this world around us that is weird and twisted sometimes.

Mike reminded us of something we just started to learn to use when D was struggling so bad. therapists talk about a "window of tolerance", with medium arousal level. that is when people can be creative and when they are able to learn. when thinking works best and decisios can be made. hyper or hypo arousal make that impossible.
sometimes a single alter goes into hyperarousal and just goes crazy inside the the window shuts, no more room for learning. so if we want to get anywhere with an intervention we gotta help them to calm down and relax just a little.

that song... we cant remember when we have last seen Asti laugh. that is sad. we want to give her time so she can do something she likes and that makes her happy. she has been working way too hard the the world is driving her crazy.
it was Mayas body time but she wanted to give it to Asti so she can laugh.

its not all broken. i think we will win.
thank you so much Sam for sharing that song. it is really speaking to all of us i a deep way.
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Re: keep on keeping on

Postby SamsLand » Sun Nov 20, 2016 7:46 pm

Hi Asti it is Lizzy

this song reminds me of you and me! I am not a protector but I am the optimist finding a way to push through everything that happens in life.

I find this song super funny!!

I hope I get to see this movie soon - and you should too!!

https://www.youtube.com/watch?v=oXjiOzUrwOE

And the other song Hair up is really funny!

I WILL GET BACK UP AGAIN!!!

Lizzy
:mrgreen:
keep ya head up, Don't let up, keep slayin em
-eminem

not sure what the point was.
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Re: keep on keeping on

Postby birdsong87 » Sun Nov 20, 2016 8:35 pm

thank you Lizzy! this is a very upbeat song.
Maya made up a little dance for it (one where you get down but then jump up again). she really wants to see the movie.
we looked into the movie trailer last night and it was the first time Asti laughed in a long time
(when the guy troll said "that is not a plan, thats a wish list", because she is an expert in plans :D )

Asti chose "read all about it" for today.
https://www.youtube.com/watch?v=vaAVByGaON0

she is singing
"baby we're a little different, theres no need to be ashamed. you've got the light to fight the shadow....
they can read all about it (which is funny because Mike IS writing...)
...making sure that we're remembered because we all matter too, if the truth has been forbidden then we're breaking all the rules (cause one rule seems to be that we have to hide in therapy...)
theres no need to be afraid i will sing with you my friend :D
we're all wonderful wonderful people, so when did we all get so fearful. now we're finally finding out voices...

this is helping. it seems like there is a little more self-esteem and courage growing.
she sometimes expresses thoughts that we are crippled inside because of the DID. that she is making the best of a life as a crip. we sometimes seem to be in the way of her success. its hard to be held back like that. hard to find any self-confidence. i know there is beauty to be found in this brokenness. putting love into making small people is a good step.

L (with a very excited Maya)
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Re: keep on keeping on

Postby birdsong87 » Fri Nov 25, 2016 11:11 pm

feeling so fake today. like i can never have DID. and all the stuff cannot be true.
i seem to hit denial whenever there is too much going on inside, too much emotion.

it felt like going down a rabbit hole, searching for ways to help Asti.
we are working with "coping with trauma-related dissociation" and this book is a life saver and just a marvelous gift as we have to work thru stuff without a qualified T.

we were trying to figure out what is going on with Asti. she fell back into old patterns and we struggled to understand why.
she felt pressure and shame. she felt like a failure.

we found out that she actually believes that it is her job to make perfect plans that get us thru life. and that its her fault when a plan doesnt work out because she should have planned for those circumstances and she should have known better. she even seems to believe that she should be able to read minds and tell the future. her intuition is good but she is expecting the impossible.

and she truely believes that its her fault only if a plan doesnt work out. no wonder there is so much shame right now. it was hard to keep her from selfharming as punishment for failure.

when we were trying to get thru to her with the bad news that she is not almighty and able to control the whole world... we got a sense of a child standing behind her, trying to hide and obviously influencing her. it was just a glimpse of a child in trauma-time, trying to feel safe with someone who can control it all. dont know how to express it. but also feeling more safe with the idea of punishment than the idea of not being in control (=helplessness)

maybe this is the answer to the question why Asti couldnt tell why she is doing things or where this idea came from.
we stopped pushing it becaue the kid seemed really scared of the thought that Asti doesnt control the whole world with her plans. there is limit of what i dare to do without a T...
but i think it at least helped Asti to understand what is going on.

a day later and it all feels fake to me. my mind trying to run away from it all.
feeling really low, tired, depressed.
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Re: keep on keeping on

Postby birdsong87 » Thu Dec 01, 2016 8:08 pm

i feel even more exhausted than usual.
Maya is hiding since Asti made our life a show of her capability.
there is a new kid nobody knows yet but she is sharing some memory and its unbearable.
the T decided to quit right away.
so we are back to T-hunting.
and its no fun.
we found someone IN TOWN who would be willing to talk to us but the insurance wont cover her. we dont have 70 bucks per session to spare. we would be hard pressed to come up with 7 bucks per session.
the other option is to look OUT OF TOWN. nobody has answered yet, but the insurance wont cover the costs for traveling. that would be at least 15 bucks per session...
running into impossibilities and they all seem to be of financial nature.
it sucks. it freaking sucks
there is a person willing to talk to us, a 20 min walk from our home, but its not going to happen.
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Re: keep on keeping on

Postby VintheValley » Sun Dec 04, 2016 11:24 pm

Johnny-Jack wrote:I know what you're talking about. It's true you have a finite amount of energy, for engaging in the work of DID/trauma, for making decisions about anything. I see it as a matter of physical and psychic energy. Below is just a start, some of it is going to sound elementary so it might be insulting, I don't know. I'm hoping it may help to be reminded of some things you already know:

On shielding yourself from the negative:
* avoid depleting your limited energy by not worrying about as much as you can, anything you can't change, acknowledge it and don't fret about it
* get rid of/avoid people/contacts who sap your energy or bring you down.
* make a list of what depletes or destabilizes you
* avoid junk foods, sugar, anything that puts you on a rollercoaster or makes you fuzzy or nervous

On drawing the positive towards you:
* give yourself credits and praise for handling anything well that took extra effort, pat yourself on the back for something every day. You didn't get enough of this talk as a child or you'd already be doing it well. I'm proud of myself for making it through many days at work without a collapse.
* make a list of what helps you remain stable
* drink a lot of water and eat healthy things, get some exercise by walking outdoors at least

I've found that trauma work isn't exactlly working with alters per se, but it's working with the trauma directly which other parts endured. When I'm working with trauma, sometimes scared littles who lived it come forward but I quickly try to own it myself so they can let go. I think doing trauma work is taking on their burden, even if not always directly.

I get these memories returning and I can't believe how awful they are. It makes perfect sense there are some of us who got to avoid ever knowing about this stuff, while others had to endure it first hand. Trauma work helps your alters. I don't know how it can't. I salute your bravery because I know how incredibly tough it is to deal with.


-----------------------------------

Wow, thank you so much for your post, it is EXACTLY how I am finding therapy.

I am lucky to have sought out a psychologist 9 years ago who happens to be an expert in the field of trauma, PTSD and DID etc, and gives workshops teaching others. I have done trauma work for 25 years with various therapists, and with my current, after a while we hit a road block and after toying with DID/DDNOS for a couple of years (somatoform disorder first) the questionnaire made it clear I had DID. For the last 11 months I've been having intensive therapy (1-2 sessions a week) to try to get to a point where I can return to work. It's been a mixture of learning the various parts and their roles, reprocessing traumas that the various parts have endured, and yes the adult taking that on and comforting them. I'm new to all of this in DID terms (lol) so am by no means good at it yet, but your description helped me see that yes, that is how it is for me, and I too believe that it is essential to regaining one's life back.
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Re: keep on keeping on

Postby VintheValley » Sun Dec 04, 2016 11:32 pm

BeccaBee wrote:you have really been getting a lot accomplished!

you deserve a breather. doctors and courts are exhausting.

I had a real bad time about two years ago. it was sort of the perfect storm of medical issues (including major surgeries), lots of Rx and anesthesia, occupational stress, single motherhood, moving to another city, and a crisis in my immediate family that involved flying to the other hemisphere to handle things. I was already exhausted and it was just too much. I woke up one day trembling in the bed. I had a fever, vomiting diarrhea. I was sick for four days before I went to the doctor. they told me I had stress exhaustion. aka: nervous breakdown. took me out of work and told me to rest. and I did. my panic was crazy bad if I tried to leave the house. I couldn't even cope with showering...took the curtain down.

the result of this is I spent weeks and weeks and weeks doing a lot of nothing. I watched dvd's and read books and took naps. I spent years getting to that level of exhaustion. and it took many months of rest to return to even a semi normal level of fuctioning. I left my job. I lived off savings. it was worth it. I learned some tough lessons in self care.

my point of sharing this is that..... I know what it's like to be so low. to feel like....defeated by your own weakness. to feel ashamed and embarassed. to feel like you aren't going to recover and your life is just sliding down the shitter. and beat yourself up over it. but I want to tell you that when you push yourself that hard. past the point of recuperating and onward. when you push so far down the road of exhaustion you break down. that is someone who is strong and determined and ruthlessly persistent in the face of adversity. it isn't because you were weak. it's because you made yourself stay strong for so long. and it's ok to take a rest. there's a clarity that comes at the lowest point. and it becomes a Rosetta stone for building a new life. what you are enduring has meaning. it has purpose. in the end you will be stronger. more whole. more true to yourself. be kind. have mercy and compassion. don't berate yourself. if you need to rest. just rest. brush your teeth and relax. eating, sleeping, bathing. sometimes that is enough. just keep on keeping on. it gets better. it just sucks hard until then.


-----------------------------------

Beccabee thank you!! You described my life right now - I know I will get through this one, I don't know how, but I just know I will. Your encouraging post is immeasurable helpful xx
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Re: keep on keeping on

Postby birdsong87 » Thu Dec 08, 2016 4:50 pm

so, we are T hunting.
this it what it looks like:

half of the Ts do have an email address. nice. sending out standard messages with basic information.
we get a return email from half of those. the other half probably thinks this is a joke.

everyone else needs to be called. the recorded messages for voice mail sound like this "if you want to apply for therapy you can call us at our phone time on monday 8:00 -8:15 am and thursday 1:00- 1:15 pm." uhm, good luck with those...

one T offered to ask a few collegues for us so we got turned down 6 times without the effort of having to talk to 6 people. that was the nicest thing a T has done for us lately.

one told us that DID doesnt get diagnosed anymore and it has become incrediby rare. she demanded infornamtion on who diagnosed us. uhm, every single T we ever had contact with. Ts who actually know something about dissociation, unlike her.

then there are the friendly and superficial conversations of "sorry, my waiting list is full for the next year" or "sorry, but i know nothing about your diagnosis". those are easy to deal with.

more difficult... are the Ts who admit that they dont know much but they still agree to see us. it feels like we are a rare animal in the zoo. curious Ts make appointments to stare at us. or at least that is what it feels like. as if this might be their only chance in life to see a DID patient in person.

so, after we have done everything we had the strength for there are 2 Ts in town willing to make a first appointment to check things out. one of them seems to know a little bit about ego-state therapy.

i am at the end of my strength. everyone is really tense. i need a break from all this.
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Re: keep on keeping on

Postby birdsong87 » Tue Dec 13, 2016 4:18 pm

today we said goodbye to our T who has been with us for more than 2 years.

we like her. she is a kind person who did her best to help us. she has been with us thru a lot of hard days, she listened to incredibly horrible stories, she was angry with us and sad with us.

she was a safe partner for trauma exposition and helped to reduce flashbacks and especially body flashbacks that way. she never hid her opinion about other people in our life and she has always been for us.

in the end she got a little intimidated by the intensity and the needs of some. but she was strong and acted in a mature and responsible way by ending our time together before things can turn foul or get unhealthy.
for 2 years we managed to keep up an emotional connection with a woman. that alone is huge.

we celebrate her today with a thankful heart and more and more understanding about how courageous she has been. she is a damn good T. with very human limitations.
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