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Here goes...

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Re: Here goes...

Postby smallcat » Wed Sep 15, 2010 4:20 pm

Wow! Thank you all so, so much for your amazingly quick and kind replies. It means the world to me. I'll reply to you all in turn, if that's alright?

Canolime - The voices are quite definitely in my head, but at the same time out. I can hear them like they're real voices, but their source is in my head. It's hard to explain. Thank you though, for your thoughts on that. And it's also interesting to know you have denial too about it... Do you talk to yours, etc? I don't really know the terms used to describe this... I thought people didn't know about their alters generally?

Cadense Risa - Yup, that all makes perfect sense. Can you explain a little more about Edward refusing to let you tell anybody? Jen seems to be able to literally cause the entire body pain... I don't know how she manages it, but it's very real and comes out whenever I come anywhere near the subject in counselling etc. And lol at the comment about "you identify yourselves by name and gender..."

InfinitD - Hiya. So you also feel like this at times? How were you diagnosed? That's a general question, actually... I've been in counselling for about a YEAR and nobody has any ideas of this... Jen lets me talk about disassociation and related feelings, and I've known about her forever (although in fairness I've only recently tuned in to Heather, Echo and Vivian, they were always there but I ignored them). She's my best friend in the universe and I can't tell anybody about her.. I've tried to work my way around it, writing stories with characters of "Jen" and "Emily", I've tried hinting... as soon as I do, Jen forces her way to front and/or seriously causes pain. Yet nobody has noticed this glaring thing. Is it often left undiagnosed?

Generally, I've also heard stuff about people NOT KNOWING about their people (alters feels wierd, and yah I mentioned this earlier in the post I think)- is it usual that I'm talking to them quite happily, can hear them talking to each other, am aware of switches and can initiate them myself? (Well, that's only ever me and Jen, although Echo came out the other day when I was under a lot of emotional pressure and just cried). Heather doesn't come out, Vivian can't come out, I won't let her. Is it normal for all of my system to be this... functional? We work together, and while there are trust issues between some of us we generally manage to keep the system intact and working in general society and through college etc. I expect most of people I know would be shocked to know that I have DID - because it's usually only me and Jen, and Jen refuses to tell anyone, she is happily referred to as "Emily" and lives and functions as me, but not as me. She's the closest thing to what I'd describe as an "alter" because she's got so many aspects of me and can pass for me in life, but yet completely isn't and is a personality in her own right.

Misty17 - I think you're right about "finding a disorder" that fits - like I said, I thought for a while I had BPD (which I may well do, but Jen certainly doesn't). And actually now that I'm properly comfortable and don't feel like a freak for having these voices in my head and these people, it's become easier to talk to them and listen to them than ever before. I mean like I've said, Jen and I are constantly talking. Echo however is beginning to tentatively ACTUALLY TALK now I'm prepared to listen, and Heather is talking to me much more and is starting to communicate things that could actually be helpful,not just generl chatter. I'm hoping to try and see if I can get her to take front. Before even that, I'm hoping to be able to get Jen out to talk on this forum, but I've rarely seen her so angry than last night when I first posted. She went absolutely mental at me, and lashed out at my sister (who is my entire world) instead.

broken_mirror - I'm so sorry you experienced terrible bullying. Some of what you said sounds similar to my situation... It's oddly comforting to find somebody whose living with this disorder and has it because of bullying... Makes me feel slightly less like I'm making this up! Thank you so much for your reply, it means a lot to me.

Thank you everyone. I hope I'll be able to get Jen to calm down and maybe talk (she talks plenty usually * :roll: ) and thank you even more for at least calming me in terms of then fact that it's possible. Maybe I do, mnaybe I don't have DID, but at least now I'm starting to get information and make an informed decision so I can investigate options at least. Any help you can give me with getting diagnosed, and what the hell I do next (given that I seem to have different eating disorders and problems with different people) etc.

Wow. Well. I hope to hear from you all soon. It's good to not be alone.

Emily.
Am I feeling what I think I'm feeling?

17 years old. Severe bulimia, anorexia, and almost certainly DID. Well, there's more than one of us anyway. I'm Emily, then there's Jen, Heather, Echo, Vivian, Lily, and possibly others. If you meet anybody else, do tell me :D
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Re: Here goes...

Postby canolime » Wed Sep 15, 2010 5:24 pm

smallcat wrote:The voices are quite definitely in my head, but at the same time out. I can hear them like they're real voices, but their source is in my head. It's hard to explain.

Yeah, I think I get what you mean. Alters voices come from inside the head, so that's another thing pointing to DID :wink:

smallcat wrote:Do you talk to yours, etc? I don't really know the terms used to describe this... I thought people didn't know about their alters generally?

Yes, we talk all day :D The term is co-consciousness :wink: If you're co-conscious, you can talk to each other, see/hear what goes on while someone else is in control of the body, etc. Multiples who don't have any co-consciousness (only blackouts when a switch occurs) have a harder time knowing about their alters. On TV, they don't show co-conscious systems, because blackouts are more dramatic (so most people think multiples can't be aware of their alters) :P

Some people don't like the word "alter". You can pick a different word :D

smallcat wrote:is it usual that I'm talking to them quite happily, can hear them talking to each other, am aware of switches and can initiate them myself?

Those can be very normal. It depends on the system. Some get along well, some don't. Same thing with switches.

smallcat wrote:Is it normal for all of my system to be this... functional?

Again - it can be :D

smallcat wrote:I expect most of people I know would be shocked to know that I have DID - because it's usually only me and Jen, and Jen refuses to tell anyone, she is happily referred to as "Emily" and lives and functions as me, but not as me.

That's the idea. DID is usually very hidden (unlike on TV :P ). Everyone works to hide it, and will usually pretend to be the "main"/"host".

Eating disorders are common with DID.

smallcat wrote:I'm hoping to be able to get Jen out to talk on this forum, but I've rarely seen her so angry than last night when I first posted. She went absolutely mental at me, and lashed out at my sister (who is my entire world) instead.

Oh, boy. Did you talk about it with Jen?
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Re: Here goes...

Postby broken_mirror » Wed Sep 15, 2010 5:32 pm

It's really hard to explain having DID and have never experienced physical or sexual trauma as a young
child, because there is very little research done on it.
It does however, happen and that's why I shared with you, so you didn't feel so alone.
Mental trauma can be very extreme as well, but most people shrug it off.

Glad to see that it made you feel a little less crazy :D
I know it took me forever to accept it and I am still in denial once in a while, but it always
helps to find out someone has gone through something similar.
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Re: Here goes...

Postby smallcat » Wed Sep 15, 2010 6:06 pm

Hi!!

Canolime - Hi. So.. is it possible that I could have a fully functioning system with all my people intact and negotiating switches, with the eating disorders/self harm/potentially suicidal aspect of Vivian? If that's true then I think there's little doubt.. I just never thought people with DID could possibly be naturally co-conscious and function in society (please, PLEASE don't take that as an insult! I'm coming from the base of people who don't konw much about the disorder other than what media incorrectly portray them as!)

Well, with Jen, it's not going well. I have a constant headache from her shouting at me. It's making me very afraid to talk to anybody else, with the information I'm getting here. It's almost impossible to lock up Jen anywhere, Heather wouldn't mind but I just couldn't. She's the only reason I'm still here, I couldn't possibly live without her. It's scaring me a little. Is it usual that they can cause you pain? Just out of curiosity... And I did talk to her, well, tried to, but she wasn't co-operating but did at least apologise for shouting at my sister. Other than that she's furious!

broken_mirror - I can't thank you enough. I have been looking for research and there really isn't any, it's mad! It just proves the point that bullying really can destroy people's lives when it's vitriolic and damaging enough. I would love to know more about your situation, if you don't mind? Like when you fractured etc? Just trying to glean as much information as possible, I feel like I'm going into something huge and unknown!

Thank you!!!

Emily
Am I feeling what I think I'm feeling?

17 years old. Severe bulimia, anorexia, and almost certainly DID. Well, there's more than one of us anyway. I'm Emily, then there's Jen, Heather, Echo, Vivian, Lily, and possibly others. If you meet anybody else, do tell me :D
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Re: Here goes...

Postby canolime » Wed Sep 15, 2010 6:27 pm

smallcat wrote:So.. is it possible that I could have a fully functioning system with all my people intact and negotiating switches, with the eating disorders/self harm/potentially suicidal aspect of Vivian?

Yep :)

smallcat wrote:I just never thought people with DID could possibly be naturally co-conscious and function in society (please, PLEASE don't take that as an insult! I'm coming from the base of people who don't konw much about the disorder other than what media incorrectly portray them as!)

I didn't :lol: I know what you mean. There's no way I would have considered DID, if I hadn't started reading this board. It's very different than what most people think. When I was trying to figure out what the heck was happening to me, when I didn't have control over my body, I was looking at mood disorders and stuff... multiple personalities never entered my mind. I didn't know co-consciousness existed.

smallcat wrote:Well, with Jen, it's not going well. I have a constant headache from her shouting at me. It's making me very afraid to talk to anybody else, with the information I'm getting here. It's almost impossible to lock up Jen anywhere, Heather wouldn't mind but I just couldn't. She's the only reason I'm still here, I couldn't possibly live without her. It's scaring me a little. Is it usual that they can cause you pain? Just out of curiosity... And I did talk to her, well, tried to, but she wasn't co-operating but did at least apologise for shouting at my sister. Other than that she's furious!

Hopefully Jen will realize it's not such a horrible thing that someone else knows about them (as long as you only tell the right people). I know the "couldn't possibly live without her", part :( I don't think you'll have to lock her up. That should be reserved for someone who's a danger to someone. Just try talking it out with her.
As far as causing pain, I don't see why not. Certain alters can take pain away, so maybe some can cause it. I don't get what you described, but when J is mad at me, she can give me a very specific kind of headache... it's like she's kicking an inside door or something :roll:
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Re: Here goes...

Postby smallcat » Wed Sep 15, 2010 7:17 pm

Hey Canolime!

I totally get what you mean... Wow. This is sortof unexpected. The more I learn (I've been scouring the whole board!) the more I seem to think it's DID.

Concerning Jen - well, I don't WANT to lock her up! Heather is utterly insistent I should though! She thinks Jen is toxic and dangerous to me and the whole system. If I can ever get her to talk she'll explain, I disagree entirley and don't even want to consider her points on this one. I just sometimes wish I could quiet her down! When she's like this it destabilises everything, I end up becoming very impulsive if I try and suppress her, and if she takes front she can be a real problem in the long-term. The pain is a problem too! It just knocks me sideways!

I don't know WHO to talk to. That's my next question. Armed with what I know, what the HELL do I do now?!?!

Thanks! Emily.
Am I feeling what I think I'm feeling?

17 years old. Severe bulimia, anorexia, and almost certainly DID. Well, there's more than one of us anyway. I'm Emily, then there's Jen, Heather, Echo, Vivian, Lily, and possibly others. If you meet anybody else, do tell me :D
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Re: Here goes...

Postby Cadence Risa » Wed Sep 15, 2010 7:30 pm

smallcat wrote:Cadence Risa - Yup, that all makes perfect sense. Can you explain a little more about Edward refusing to let you tell anybody? Jen seems to be able to literally cause the entire body pain... I don't know how she manages it, but it's very real and comes out whenever I come anywhere near the subject in counselling etc. And lol at the comment about "you identify yourselves by name and gender..."


He would either take over or just scream things at me like: "All you want to do is hurt us!" "You're an idiot, you had no trauma." :roll: He also told me when I was in my high school psych class that I was doing what my teacher warned me about. (She said we'd look at some of the conditions and thing, "That sounds like me!") Eh, I finally gave him enough facts to get him curious. (And proved myself more right last night, but I'll be posting that in a thread soon. ^^) But, I still go through denial times, and Edward now points out what I pointed out to him. Which is funny, but useful.

-Kris

(P.S.: I feel the need to say that I start singing I Should Tell You from RENT every time I see your thread. :oops:)
Kay, seeing how we switch and do actually talk, we'll color code ourselves: Kris (The Host), Edward, Jasper, Arista, Rein, Sycamore, Kitaro, Fiametta (Who only speaks Italian.), and Adonis.

What my Alters look like in the mindscape
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Re: Here goes...

Postby canolime » Wed Sep 15, 2010 7:58 pm

smallcat wrote:I don't know WHO to talk to. That's my next question. Armed with what I know, what the HELL do I do now?!?!

Who, as in a therapist? You would need a psychologist (preferably one who specializes in dissociative disorders). It's better to stay away from psychiatrists, because they'll probably give you anti-psychotic meds for "hearing voices". Medication doesn't treat DID (but can be used for the depression, anxiety, etc. that can come with it), and can actually make things worse... so yeah :P

You could try a regular therapist, but they usually don't know a lot about DID.
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Re: Here goes...

Postby smallcat » Thu Sep 16, 2010 2:01 pm

Hi Kris! I know what you mean, I live and breathe musical theatre so I have all the songs too lol :D

Well, Edward and Jen seem to have some things in common... Eh, if Edward has sorted himself out I'm sure Jen will too! We live in hope.

Canolime - this may sound like a stupid question, but how does one go about GETTING a therapist who specialises in disassociative disorders :P Thanks!

Emily :)
Am I feeling what I think I'm feeling?

17 years old. Severe bulimia, anorexia, and almost certainly DID. Well, there's more than one of us anyway. I'm Emily, then there's Jen, Heather, Echo, Vivian, Lily, and possibly others. If you meet anybody else, do tell me :D
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Re: Here goes...

Postby canolime » Thu Sep 16, 2010 5:21 pm

smallcat wrote:Canolime - this may sound like a stupid question, but how does one go about GETTING a therapist who specialises in disassociative disorders :P Thanks!

Not a stupid question :D

There aren't a lot of them and it can be expensive :( I'm pretty sure you can find a list of them, here: http://www.isst-d.org/find-a-therapist/ ... rapist.htm
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