CD

Hi, i was wondering if anyone else has had the same experiences when it comes to health professionals and cd. I am 24 and i have two young children, my symptoms started nearly a year ago when out of nowhere i had extreme pain in my back and numbness from my waist down i also experienced double vision, excessive shaking, water retention and tingling fingers and some numbness in my arms. I had an mri scan which showed a small lesion on my spine which although was clear to see wasn't big enough to cause the amount of symptoms that i was experiencing. I was in hospital for 12 weeks all in all and was still none the wiser about my condition. I was in a wheelchair for 8 months all in all and still have to use it when i have really bad days, all though a lot of my symptoms subsided i still have extreme pain in my back, some days are better than others. I moved house and now live in an adapted property and recently have began to be able to walk short distances but then struggle due to the pain in my back. I have a long history of mental health issues and have recently been diagnosed with cd. I feel like i'm not believed in the eyes of my neurologist and find him quite abrupt, i feel that i'm just seen as 'faking it' but the pain is so real to me. I am constantly in some sort of pain and feel very alone although i have a supportive family and friends. I had never heard of cd until my diagnosis, feel under an immense amount of stress when i see my dr as i feel completely belitted by him and find it hard to talk to him. This has taken over my life and feel completely helpless. Sorry for the length of the post just feel like i'm on my own and would like to hear about other cd sufferers experiences with neurologist's etc

I don't know about this, my friend. I'd like to have a look at that lesion on your spine, for starters, as it could very well be the cause of your problems. You just don't seem like others with CD whom I have talked to hear over the years. Would you be able to request a second opinion on the problem?; particulary a second opinion on the lesion? I fail to see how a doctor could not relate clear physical symptoms to the lesion.

Then again, I am not well versed on CD, and this community here does not have many CD members.

Please let me know if you have found any information elsewhere.

TAke care,
kevin

Hi, thanks for replying. I was first given a diagnosis of transverse myelitis but that was then changed to cd, i have no understanding of my illness or why i'm in pain on a daily basis. Almost feel like i've been lost in the system, have changed my neurologist just yesterday as would like a second opinion and maybe find out what is actually going on. Have never heard of cd before and am just trying to get some more info on the subject, sometimes feel as if i'm just 'mad' and have questioned myself many times. Feel totally confused by my own body and mind.
Thanks again, Natasha

Hi Natasha - I like your name. every 'Natasha' that Ive met in my life has been a lovely individual. Anyway, every person who comes here to talk abuot CD seems to be in the same boat as you - i.e. confused. In my part of the work, CD is never heard of, and I've only ever heard of it when spoken in an American context (assuming you are American). I am doubting that there are any community forums out there specific for it either...?

Kevin

Hello Natasha, I'm very sorry to hear about your diagonsis because it's a difficult one to handle. But, very happy you were diagnosed...right?
I'm 18 years old that still 6 years or so later still experiencing symptoms of CD. When I was about 12 years old, I was coming home from school noticing that I was unable to control the shaking in my left arm. Days later happened to both legs so I needed a wheel chair. Then, weeks later I started having non-epileptic seizures many, many times a day. My parents got me into therapy, many testings, and seeing a nuero(he & she believed I was faking as well).
Now, at 18 still involved with therapy I only have problems with confusion, forgetfulness, looses voice, joint pain... if stress takes over me than I get sick for days.
Therapy helped me discover how to handle different stressful situations, and ect. Also, lots, and lots of reading on the web helped me get a better uderstanding of the disorder....

Are you engaging in any kind of therapy? What's someof the history of your 'mental illnesses' in the past...
Was there a stressful sitation that occured when this started happening?
How have you been holding up within these last few days?

Stay Strong hun,
Gabriella

Yes unfortunately the neurologists and many medicos have a textbook inspired attitude that CD is not real and that its due to an overimaginative worry or some such nonesense because of the antiquated fruedian theories, so its a very very common experience universal i would say that CD people find the nuerologist is an asshole!!! yes ive had that too. and many doctors too...unfortunately most are ignorant except for their antiquated textbook methods which is to fob off the CD patient. if you not happy keep persevering until you find the right treatment its important to educate yourself and learn a lot ..Unfortunately science is still catching up with this disorder because it has been ignored "catch 22" by outdated dumb theories. Take care of yourself!! Stuff the doctors go to ones who know more about it.