I am married to the most wonderul man. We have been together for 23 years and he has been amazing regarding my health. I have more than one health issue. I have colitis as well as having had my hip rplaced at 40. On the surface I look like a youthful happy woman and no one would ever know how hard it is to simply function. People are attracted to me as I portray a very happy upbeat and positive energy. Of course thats on the days that I can make it out of bed. In other words on my manic days. I am able to sleep only 0-2 hours a night sometimes being up for over 40 hours straight and having energy to spare. Those days of course are darkened by the knowledge that I will have to pay dearly for them. The dark days are just awful. I think about suicide often, never planning on following through with the thoughts as I would NEVER curse my loved ones with that. I recall how my mothers attempts made me feel and I am adamantly opposed to that choice.
The issue for me is how to deal with the guilt. I did tell my husband when he originally wanted to date me that he was mistaken. I proceeded to list the many many things that were wrong with me and that he had no idea what he was in for and that if knowing all of that he still wanted to date me that at least he was warned lol.
23 years later and I am still dealing with mental illness. At least I now have a diagnosis but so far the meds are not helping AT ALL. I have been given seroquel XR and was supposed to go for a follow up appointment yesterday at 330 but I slept for 36 hours and missed it. I also of course missed a dose as its hard to take meds when asleep. I told my DH that I had a migraine as I feel like $#%^ telling him that its the mental illess. He was the one that said that my mental health was bad enough that I needed to stop trying to work. He was the one that said stay home and get better. He has been so kind and loving and I know that I shouldn't be hididng the symptoms from him but he is trying SO hard to help and it feels like I have failed him somehow. I have told my daughters about my diagnosis and both replied "no kidding" with joking sarcasm. They said that they had both come to that conclusion a long time ago. They are such smart cookies.
Has amyone ese felt that thay needed to hide the illness and to try and protect their loved ones? How did you or are you dealing with this aspect of being ill?
Thanks for any help you can offer.
Sincerely,
Alice