by Cynwyd » Sat Jul 16, 2011 8:50 pm
July 15, 2011
I am 63 but just discovered this year that I have BPD. I knew I always felt “bad” about myself, felt unworthy of love, and felt worthless with no identity, but I didn't know why or what was going on. After realizing that my underlying fear/terror was fear of abandonment, things began to fall into place. I was in therapy for about 25 years, but no one diagnosed me or helped me, but rather made me worse. So, I read everything I could about BPD and wrote up my own version of how it played out in my life. I had an affair over 2 years ago that destroyed my family. My husband still loved me and was willing to work with me to find out what was wrong, help me, and keep loving me while making me feel safe to unravel my problems. I certainly had my BPD well hidden. None of my therapists had a clue. Neither did we! Since Learning that fear of abandonment was my largest demon, that led me to BPD. There I found myself well defined. The amorphous emotions of feeling bad, worthless, unlovable, empty, no identity, no self-esteem, impulsiveness, and just not being able to read people got me into trouble as my grown kids began to leave home. I had the affair around this time with a man I had known long before I met my husband.
Here's a sketch of what I have been doing to “fix” myself when I feel I am reverting to my old behaviors. I have written out all of my problem areas, looked for the trigger points that set them off, have put in place a replacement behavior (even if it's taking some deep breaths, closing my mouth and not talking, or revealing my impulses or whatever to my husband. I realized that I was lying to cover over the affair and all the phone calls and emails that made me get home late from work. After about 6 months of dealing with all the lies, coming clean on everything and answering all my husband's questions, I realized that my lying was only the symptom to cover over a sense of PRIVACY, where I could hide things that I didn't want anyone to know about. This caused me to have even lower self-esteem and put distance between an open relationship with my husband and grown kids. I decided the day I figured this out that the truth was far better than keepying lies and secrets. This was the real beginning of my recovery, since I kept none of myself hidden from my husband. (My kids didn't want to hear anything about me or my recovery, so we no longer have personal relationships where they talk to me about their lives. At least they talk to me now.)
Some of my issues were impulsiveity, black and white thinking, lying, misreading people, projection of my anger, lack of identity, emptiness, mood changes and depression, stress, wothless, unlovable, FEAR OF ABANDONMENT, wanting to be dead, etc. I realized that this originated when I was an infant and my parents cound't connect because of their own disconnected backgrounds and abusive behaviors. I worked the 12 steps as a way to work though this, even though I am not an alcoholic, and began my recovery. What I learned about my BPD is that each behavior has trigger points. I have worked to isolate the trigger points and replace them with something else like deep breathing, prayer, a short exerxice, an alternative behavior, etc. I then wrote up my BPD as though it were a physical illness called Border Mal Seizure and listed all my symptoms. Why did I do this? Because I think if I approach this as a physical illness, I won't get so down on myself even though I am making much smaller mistakes in my behavior than before as I get control over this. I then wrote out a “treatment” plan that involved asking my husband to keep me safe during my “seizure” by wrapping his arms around me tightly, which is also what he does when he hugs me with a sense of safety and closeness. I thought if I could break up my behaviors into a list that we might both be able to stop my behavior in its tracks by doing something that includes attachmment, safety, and love. Hopefully, this will help me bypass some of my self-loathing and treat it as an illness with a treatment. In fact, I will paste my list here in case you can use any of it for yourself.
Diagnosis: Border Mal Seizures
Symptoms:
Change in voice
Anger
Confusion
Argumentitive
Throw objects
Leave the room
Sarcasm
Facial expressions
Projection
Moodiness
Treatment:
Safety first: put arms around patient and squeeze tightly and with a sense of safety.
Discourse: pronounce, one safely in arms, that patient is inhabiting borderland and is not in a safe place to be. Tell patient it is time to leave borderland and come back to reality. If this fails, take patient to sofa or bed and hold until the symptoms subside.
Touch: Petting and stroking take the sting out of the underlying thoughts that cause symptoms and allow the opportunity for discussion in a normal tone.
Underlying thoughts: Humiliation, failure, emptiness, fear, lonliness, crazyness, confusion, grey zone between black and white, impulsiveness, neediness, lost, can't find way back.
Aftermath: Guilt, sorrow, grief, self anger, frustration, loss, failure, lack of control, fear of permanent loss.
Note: These symptoms, process, and aftermath are primarily directed at self but present as projections. Feeling out of control and lost instigate a sense of extreme fear, loss, and anxiety that are self-directed but projected onto others as a sense of preserving what is left of self. Please not that extreme shame and sorrow follow these border mal seizures which may, if untreated, last for an hour to two days. Treatment can be very effective, with few negative side effects for the patient. It is the caregiver who experiences the side effects, which also last up to two days or more, depending on the the severity of the seizure. Do not leave patient unattended and do NOT engage with seizure behaviors, however much one wants to offer “help.” The only help is to stop the seizure in a manner that keeps the patient safe from self harm or harm to others.
I know this is long, but I hope you can find something out of this that may help you in your road to recovery. I have found that it is perhaps most difficult for me to control my impulsivity (especially when I want to talk to my kids or explain what to watch out for, because I know I passed some of this onto them and they don't even know they have it). The step that has allowed me to recover the most was giving up my privacy so my husband and I could be totally open and close, even if I told him I lied or felt anxious and so on. We have rebuilt our relationship (so far) so that it is better, more intimate, and just closer than ever. I still get so upset with myself when I fall into a BPD behavior and I have to work on that. '
I also realized that too many things were working out in a way that neither of us could have planned for, and this brought prayer and grace into the picture. I was never sure of my relationship with the Lord, but now I feel we have been handed so much grace that I can't ignore it. Prayer, gratitude, asking for mercy and strength and to soften my childrens' hearts are part of what I do when I get close to BPD thinking. I also do it every day.
I hope you will find what you are looking for in this forum. I know I sometimes think other people do not give enough details to really know what they are going through, but it helps me to write out what I am going through and how I am learning to deal with it. By sharing, I reinforce my own plans for recovery. In fact, I just a few days ago I had a bout that last two days because I had misread two different people I knew from my borderland times, who leaked into the present. I get down on myself, project my anger, and start a whirlwind of painful agony for both my husband and me. This is when I made up my “diagnosis” list.
Take care and know that you can improve, even if little by little, but it does help to build a foundation and begin to form an identity based on reality, which was something I could easily drop in the past. If you are committed to getting better, chances are good that you will if you make it a priority in your life. I know I want my relationship with my husband to grow more intimate and fulfilling each day and I would love to get my kids back someday. I am also tired of hating myself, being afraid and angry, and out of control with my impulses and moods.
Cynwyd
-- Sat Jul 16, 2011 3:29 pm --
July 16, 2011
Since I came up with my Border Mal Seizure scheme, I am going to try to think of my BPD as a physical illness that needs treatment, just as one would take an allergy pill when sneezing and rubbing sandy eyes. I am hoping that this will eliminate (yeah?) the need to sink into the hole of self-hatred, disappointment in myself, and despair when I screw up. The good news is that my screw ups are within the circle of our marriage rather than outside. That makes a HUGE difference. After I wrote about my seizure diagnosis, I found something online that said that "holding" the person safely (not necessarily "hugging") is what some therapists do to help their patients with attachment disorders to settle down and keep from hurting themselves. I was using the "hurting" more as a metaphor for wanting to be held, contained, and loved. I do think that we need to begin all over as infants and somehow, SOMEHOW, find a better way to grow ourselves up to healthy adults. I know I am stuck in place where I need attachment that is real and good. I am seriously trying to stop my acting out to get attention when it is attachment I am needing or feeling a lack of. Bowlby and Ainsworth studied orphans after WWII in England and their attachment disorders. Good reading if you look up their studies. The responsiveness of the caregiver is critical, and children were removed from poor caregivers. This goes for my therapists as well, who should have had their licenses taken away for taking all my money and making things worse, WITHOUT EVEN A DIAGNOSIS that I perhaps could have dealt with. Now, my husband and I are going it alone, along with research from the Internet. I am getting better, but find I get worse before I get better. I guess I learn from my mistakes, and they are so painful to me now that I never want to repeat the same behavior. I also want to stop blaming myself and hating myself for being "insufficient" as a wife, mother, and adult.
I have started some artwork, sewing projects, reading, exercising, and other things that bring me pleasure. This helps. I am quite fearful about being around people because I make such a mess of knowing who they truly are rather than how they present themselves. I should know, because I was an expert "presenter." I learned early on how to look normal, seem normal, and even act normal, but I was not. I was empty, lost in the universe untethered, and a nobody. How I went 60 years like this is beyond me. I know now that my time is limited regarding getting myself "fixed," so I am working extremely hard on myself and what I am doing. I am actually pleased that I am able to come up with concepts like "nice" people, the "border mal seizure" plan, etc. I still use my tool kit of words that I have taped to my computer (privacy, trust, protect, gain, look good, eye contact, and CHOICE). I have been able to stop my impulses.
Since our kids are what keep us tied to the past and such horrible loss, my husband and I have decided that for the last three weeks of July we would not contact our kids in any way, but see if they contact us. As of now, one son called my husband for advice, and another son emailed me about an apartment he is looking at online where he will be doing his PhD work. I was able to put him in touch with someone I had made a "good" connection with when this person sold my father's home after he died. He will look around and even check out apartments my son finds online. I was very relieved and pleased to allow this to happen. This is the son I am the closest to as well. I had my husband's consent to contact my son about this particular issue, since it is timely.
I am happier now that I am doing things that I enjoy. I have stopped looking for jobs temporarily (or I should say applying for jobs that are not suitable) because of my people issue. There is a part time job that may potentially open up, but it has dragged on long enough that I don't trust that it is really an option. We are hoping we can live without the income from me having a part time job. We are trying to stay in the present (which is GOOD now) rather than worrying so much about our gown kids and the future. It is humbling to pray and see the grace that has come our way in our healing process. So, this is where I am today. Oh, one of the things I am working on is a wall quilt advent calendar for my daughter and her husband. She is the one I have had the most problems with for years and I tend to buy her off with gifts or small shopping sprees when she visits. At this point, it is her mother-in-law who is her "mother" and she just puts up with me and will give nothing personal about her life. I know that making this for them could be a treasure when they begin their family and could be used year after year. But, why I am doing this for her could still be part of trying to "buy" her back, which is not likely at all. I even thought of keeping it in case our kids have their own children and actually come to visit us at Christmas time. Nah. I gave up on that one. Guess that's it for now.
Cynwyd