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Chronic Pain/Fatigue

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Chronic Pain/Fatigue

Postby TheCollective » Fri Sep 20, 2013 9:34 am

Do other people with DID have unreasonable amounts of pain and/or fatigue? I am 25 years old and I can barely do anything at all. I'm scared of doctors cause they just label me crazy and send me to the shrink even though I am in pain. I am labeled with fibromyalgia, psychogenic asthma, migraines and probably conversion disorder so whenever I'm in pain it has to be something mental I guess cause I'm crazy. I was labeled fibro by the same doc who ignored my acute kidney infection which could have killed me, he was abusive he even hit me in my kidney and I didn't realize until about 3 months after the fact. I wish to be reinspected but since I have such bad memory and get really confused all the time I'm scared that they will still think it's all in my head. But even if I would have fibro and conversion, it can't be possible that this is so debilitating that I can't do anything at all anymore? Can it? Do other people with DID have so much physical pain that it reduces their life to almost none?
~TheCollective, F. 31

Dx DID, C-PTSD, BPD. Suspect bipolar.
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Re: Chronic Pain/Fatigue

Postby Rubyscarlet » Fri Sep 20, 2013 2:53 pm

dissociative-identity/topic114881.html

At the moment I have very little pain. I have found that homeopathic treatment works for me (I went back to my doctor after writing the posts in the topic above, and visit her every month as well as checking in over the phone) as well as facing up to the sources of my trauma - with extreme caution. I believe the pain, in my case, is caused by emotions and traumas which have not been dealt with. It is psychosomatic, but that does not make it any less real. The pain I have suffered from was quite definitely real and physical, whatever the source.
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Re: Chronic Pain/Fatigue

Postby TheCollective » Sat Sep 21, 2013 2:11 pm

So when you have/had these bouts of pain, you can't do anything at all? I'm glad it's getting better btw :)
I'm sorry I didn't remember posting in your other topic. I do vaguely remember bits of the documentary.. I remember what he looked like and I remember not liking that he seemed to say that once it's been proven that someone has the fibro, it's not worth having us checked out. Made me angry.
See I don't know if these are trauma and/or emotional memories. For as far as I can tell nothing ever happened to my foot, so why does it go numb?
Why do I get bruises on my arm in the exact same spot where I once severely bruised it, 11 years ago? That doesn't make sense at all. I can even remember bruising my arm. I can also remember not allowing the pain since I had to continue working but, I just struggle to believe that things like these can be true, and I struggle to see the usefulness. I think it's really weird that this pain decides to reappear and re-bruise my arm at some random moment.

On the other hand, TRIGGER WARNING I guess;

I got beaten up at school for years, daily if they could, so why don't any of these bruises return, cause this is something I DID dissociate. Aside from the others telling me to remember that it happened, I still can't remember most of the instances that happened at school. I would think that these are the physical things that would return instead of the arm.?
~TheCollective, F. 31

Dx DID, C-PTSD, BPD. Suspect bipolar.
Rx citalopram 20 mg, depakine 600 mg, abilify 5 mg
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Re: Chronic Pain/Fatigue

Postby abreality » Sat Mar 22, 2014 7:16 pm

I'm bring up this old thread because I really need some support around this.

I am SO tired lately all the time. I can barely muster the energy to leave for work in the morning, and even then, I am tired by 3 hours in at my shift. This is not workable for me... I am so depressed and suicidal at how effing miserable everything feels. I am just so down and out about how low my emotional state has been, and now, with these "mystery" physical ailments (including a lot of pain and fatigue) adding to the issue, I just don't know if I can do this anymore. Does anyone have any experience or thoughts on how to overcome this? I try really hard to take good care of myself, though it's difficult with some eating disordered behavior, but otherwise try to really take a lot of supplements, avoid sleep deprivation (nightmares throw that under the bus sometimes). I was switching a lot throughout the past couple of weeks, which I wonder if that has to do with this, but I am absolutely drained of any resources. All I can do lately is drag my heels through work, come home, and crash. Anything anyone could offer would be appreciated.
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Re: Chronic Pain/Fatigue

Postby Im-pure » Sun Mar 23, 2014 1:18 am

Same....sometimes its a no win situation so im just trying to force myself to exercise hoping it will add up later on and i will feel more energized....
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Re: Chronic Pain/Fatigue

Postby TheCollective » Sun Mar 23, 2014 10:27 am

Well for us it's a combination of learning to be more aware of what we're doing with the body, getting enough sleep every night, and exercising. Exercising works but it's slow. At first you'll be more exhausted but over time it builds your general strength and the way everything in the body works, so then you can handle more.
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Dx DID, C-PTSD, BPD. Suspect bipolar.
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Re: Chronic Pain/Fatigue

Postby Nina11 » Sun Mar 23, 2014 3:05 pm

If you have no physical reason not to, exercising can be good when done moderately-

as for energy there are foods that you can take in to increase energy or supplements.

Food can be : goji berries, they re rich in vitamins and are a real upper -

supplements can be : magnesium

If this fatigue has just come up and is severe it s worht havin your bloods checked out just to be sure-
it s not cause you have DID nothing else can have come up -

do you drink enough water? it s easy to get dehydrated when eating goes wonky and all - it s worth checking the symptoms and whether you find yourself in them

switching does ask a lot of energy

have you discussed this with someone medical trained?

THe Collective,
Fybromyalgia is a very tough condition that brings along a lot of pain and fatigue which vcan be worsened by psychological stress-
so that s not abnormal - but tough as the medical profession offers no real solutions but CBT and exercise.
Do watch what you do cause it can make things worse when you over do it, but I think you know that.
I find that food that minimises infections helps out, as ginger, curcuma.
Coconutmilk works for me too -

It s hard when your life is severly affected on different levels, and I find the people I know who have mental and phsyical diagnoses have a harder time managing daily life - I guess cause it complicates things mmore

Much strenght for all
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