Penile thrombosis

Hi everyone,

I'm a male, i'm 27 years old.

I have already posted here about my sexual dysfunction issues that I attributed to a neurological problem. After consulting a urologist last month, I learned that my problems are much more serious than I thought. My problem is mainly vascular. I have, it seems, a cavernous penile thrombosis of the deep dorsal vein (not to be confused with penile thrombosis of the superficial dorsal vein which is much less serious). The main vein is injured. It's irreversible and degenerative. The blood is no longer properly evacuated and remains trapped in the penis, which creates fibrosis and problems of sexual dysfunction. A shot goes, it goes to complete genital anesthesia and it can even turn into infection, which requires the complete removal of the penis.

As if I was not poor enough, I received a puncture and phenylephrine injection treatment from an emergency room urologist who thought I had pseudo-priapism. He was unable to remove blood and immediately after the procedure, my penis was hard as stone and the scrotum completely relaxed. Since, my penis wavers between two types of semi-erections. He never returns to his normal flaccid state. My scrotum hangs much more than it should and no longer holds my testicles. I often have to hold them with my hand. To the touch, my penis is not at all like before, it is weird, as if it had more the same consistency inside and texture / touch on the outside. In erection it's worse, my cock has a malleability she did not have before, as if it was liquorice. I am able to "crochire" my way in different places and it remains crooked. The skin is no longer the same. It's like I've been burned where cavernous bodies. In erection I have a blister on the left as if I had been burned with a cigarette. I have pains that I did not have before. Burning sensations as if my penis was boiling inside, sensations of numbness almost constant. The penis became smaller / less thick than before and harder / more compact, but longer as if the suspensory ligament had been severed. It will be a month and my penis has had almost no improvement since the injection of phenylephrine. I read somewhere that phenylephrine could cause fibrosis ... Doctors protecting themselves, nobody wants ask to my questions.

The doubts of my urologist have been confirmed by ultrasound. He said I had fibrosis, blood flow was still present in my cavernous body, but he is not 100% sure about thrombosis, but he says it would explain everything else. My fibrosis being generalized and not localized, we can evacuate the possibility of Peyronnie's disease, especially since I do not really have any curvature. My urologist is supposed to refer me to another urologist and put me on a waiting list to do an MRI with a radiologist able to interpret the results correctly. He should have done this the first time, it's very amateurish. And nothing is sure and the wait is long.

I read that there was a medical treatment combining a low molecular weight heparin (dalteparin sodium 5000 IU / d) for several weeks and a platelet antiaggregant (lysine acetylsalicylate 160 mg / d) for a period of a few months. I can send you articles by private message if you are interested.

Nobody seems to be able to help me in Quebec. As soon as a thrombosis is suspected, the urologists immediately want to put penile prostheses. Do you know of urologists willing to try treatments to try to reduce penile fibrosis? How do you get treatment in another country, what is the procedure? I would be ready to meet an urologist in France, USA or elsewhere if necessary.

The more time passes, the more serious my problems are. I must act quickly and efficiently.

Thank you.

Its been some time now since your post, what have you discovered thus far and are you doing any better? TY!

Thank you for taking news about me. It's very appreciate.

No, it's always worst. I take Pentoxifylline 400mg since 1 month, but it''s not effective. I need a better treatment.

Willy31, you mentioned in your first post "I read that there was a medical treatment combining a low molecular weight heparin (dalteparin sodium 5000 IU / d) for several weeks and a platelet antiaggregant (lysine acetylsalicylate 160 mg / d) for a period of a few months.." Is or has your Dr. talked to you about this treatment?

No, I read that in a website. I talk about that to doctors, and they say that it's not effective for my problems.

-- Sun Sep 01, 2019 11:40 pm --

I do a MRI in march. The almost all of my penis is fibrosed. Before injection of phenylephrine (19 january) my penis was a little bit fibrosed but not very much. Now, since 19 january, it's terrible.

They can't do any sort of reconstructive surgery? Check out the link below for more informaiton on my suggestion.

https://www.newsweek.com/penile-reconst ... 0to%20male.

Interresting. But...
-Phalloplasty is artificial. And need to implant penile prothesis in penis.
-Penis transplant is not very accessible. 1/3 of the american's army is in front of me n the waiting list. And the person who have a penile transpantation must to take immunosuppressor for the rest of his life and it's very dangerous to develop cancer.
-Lab-grown penis is not again available.

As you stated " I have, it seems, a cavernous penile thrombosis of the deep dorsal vein." In reconstructive surgery. as I understand it, this vain is replaced from another source in your body. I am not pretending to know anything about the issues you are having with this, as I am sure you have exhausted many avenues to fix the problem or at least make it better somehow. I am not talking about replacing what you have, just ways to make it better for you.

"In reconstructive surgery. as I understand it, this vain is replaced from another source in your body"

I think it's not possible. But same if it's possible, it will not remove my fibrosis problem.

"Phalloplasty, which is surgery to reconstruct or completely build a penis, is a way for patients to regain both urinary and sexual abilities."

"Men who suffer severe trauma or a loss of their penis through an accident, or medical affliction such as cancer, are usually candidates for complete phallic reconstruction."

"But the medical community is only beginning to answer the question of just how well the reconstructed organs actually perform. Because the surgery is currently used for two very distinct patient groups—biological men and transgendered—the outcomes aren't always the same. New research presented at the Annual Meeting of the American Urological Association on May 7 suggests the success rate of these surgeries is high, as is patients' satisfaction with its outcome."

I am guessing you didn't read the link above.

Tell me again, why this wouldn't work for you?