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I was diagnosed with myofascial pain syndrome (and migraines

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I was diagnosed with myofascial pain syndrome (and migraines

Postby ON_THE_EDGE » Wed Jun 04, 2008 12:49 am

Well, a Chiropractor did, About a couple years ago, I started electro-therapy on back. Well, actually the doctor attached the probes. It was a long drive for me, about 25 miles each time.

Well, I don't believe the treatments worked that much. I still got migraines almost every day, and most were debilitating, and I had to spend up to 12 hours, writhing in pain, and sometimes throwing up.

Sometimes I made myself throw up, because it made me feel a little better. After the throwing up spell, I would get all sweaty and hot, but it felt so good to go back to my room, with the A/C on (in the summer)

well, I've been on a diet and cut out sweets and most carbs. My Medical doctor (he is the one that told me my headaches were migraines) told me I was becoming diabetic (I had the migraines and back-neck pains for years, but never was diagnosed with diabetes)so he said I should stick to a high protein, low fat diet. So I did. My headaches are less numerous, and those I do have are not too bad. As long as i lay down. (I know that if I do not lay down, the headache will get worse)

But now, I am getting more shoulder and back pain. And neck pain. It is a burning pain. Aspirin and other NSAIDS help, but do not relieve all of the pain. It make the pain level go down from 7 to about 3-4.

I've had CAT scans done of my back, neck and head, and they could not find anything abnormal.

However, I have fatty tumors on my back and arms, and etc. you cannot really see them, but you can press around and feel the lumps. Docs says they are not cancerous. And they do not get bigger, theat I can tell.

Anyway, I had to give up my job in the mid 90's because of pain and stress, stress from work, which aggravated the pain.

It seems like no-one has an answer. Or an answer that helps me overcome and defeat pain. And I'll also say that stress brings on, and/or aggravates things.

Also, I fatigue easily.
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Postby jasmin » Thu Jun 05, 2008 3:53 pm

Hey, ON_THE_EDGE! I hope someone can give you advice on how to get rid of your pain. You can vent here about it if you need to, and there will be someone to listen. Could you try some yoga exercises for relieving back pain, maybe?
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Re: I was diagnosed with myofascial pain syndrome (and migraines

Postby deltarose » Tue Jun 15, 2010 11:56 pm

I have fibromyalgia and chronic migraines, so very similar to what you are experiencing.

I have had migraines for several years that have just gotten worse and worse and more frequent. I finally went to a neurologist who has me on a daily migraine pill and has given me medicine to take for the breakthrough migraines. When I first went they put me through this IV treatment, where for 3 days I had to go into the clinic and I spent the day there going through a serious of different medications. I slept the whole time I was there, but I got irritable and grouchy afterwards, I wasn't allowed to take my migraine medicine so I felt really horrible and it took about a week to get over the fatigue. However, after that the migraines got a lot better. Unfortunatly, due to insurance issues I had to change my medicine and the migraines have gotten bad again.
But this is something maybe you could ask your doc about.

As for the pain...I understand...I have trouble just getting out of bed most days. I also have interstitial cystitis and iliolingual nerve entrapment, and some other health issues...so I have a lot of pain stuff going on. It took me a long time but I finally found a doc who understood what I was going through and makes sure I have medicine to help me. These things help me live day to day and not be bedridden (I've been there, done that and it wasn't fun).

If you aren't getting treated for your issues, then find a new doctor and keep looking until you find one who understands and can help you. You shouldn't have to suffer. For instance, It took me about 5-8 docs to find one who could even diagnose me, but he didn't know much about my IC, then it took me another 3 docs to find a doc who actually specializes in this fairly unknown problem and he is fantastic. I'm so grateful to have found him and he is able to treat at least two of my other problems!
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Re: I was diagnosed with myofascial pain syndrome (and migra

Postby maggie6max » Mon Apr 23, 2012 3:27 am

Dear on the edge. I think we are twins I too have chronic pain. over 5 years. Lots of test meds and docs. I have no health insurance so I am having a hard time getting any type of diagnoses. I am sorry you feel so bad. There are days that I cant get off the couch or take care of my family. My migraines have gotten a lot more often. I am going to keep fighting my doctors this is not how a body should feel. I think we both deserve answers. Hang in there I try hard go pay attention to things that aggravate the pain and eliminate them but there arc days that it can just be getting out of bed. Sorry to babble on but do know that you are not alone.
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Re: I was diagnosed with myofascial pain syndrome (and migra

Postby samanthabutt » Thu Oct 04, 2012 1:55 pm

Hi there. I do not know where you live and realise things are very different country to country.
But bear in mind that many doctors do not understand a lot of illnesses (or even accept that they exist). There are lots of illnesses that have similar symptoms to this. Lupus springs to mind.
Changing the diet is one of the best ways to cope with it. If it is an auto immune problem
and one of those types of illnesses it can make a huge difference. Taking some supplements can help too - cumeric or tumeric would help with the headaches maybe, eating a lot of apples might,
selenium is helpful, so is vitamin C. The energy level tends to go up and down according to the rest.
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