News of Rare Diseases

I believe I have the rare disease below. I will let Wikipedia describe what it is.

https://en.wikipedia.org/wiki/Spinocerebellar_ataxia

I have lived most of my 68 years with psychological difficulties caused from childhood sexual abuse. I take Zoloft and bupropion to combat depression. I began having strokes at 55. I have had 3 MRIs which show brain atrophy. I have many of the symptoms of SCA. I see a neurologist on ...

I had a series of mental breakdowns from the ages 13-18. I was put on welbutrin when I was 13 after I became depressed due to a death in the family. I wasn't cooperative with taking my welbutrin everyday and would hide my pills and go weeks without and then weeks on it whilst my psychiatrist continued to raise the dosage not knowing I wasn't taking it regularly. I started having fainting spells and intense ...

CADASIL stands for Cerebral Autosomal Dominant Arteriopathy with Sub-Cortical Infarcts and Leukoencephalopathies. It is not as rare as once thought, and has been estimated to be 40% of multiple sclerosis diagnoses (remittant/recurrent).

While it appears to involve mental illmess issues, it is a result of mutiple micro-bleed strokes, some "silent" strokes. I want to raise awareness of this condition found around the globe, as it is genetic. There is no known treatment or cure but ...

Hi, I am trying to find people that have or know anything about buergers disease.These rare disease can leave a person feeling alone, Currently I have a lot of pain, and I am wondering what people are using for pain management.

I have lived in some very moldy environments and recently decided to get tested for mycotoxons. I found that I do test positive for certain mycotoxins-one of them so toxic that it is used in biological warfare! So some of my difficulties in the last 2 decades or so have been from toxic mold exposure.I'm sharing this because many people are exposed to mold in their environments not realizing how damaging it can be.
Just ...

Hypoparathyroidism is a rare disease that goes hand in hand with hypocalcemia (low calcium). Only 40 people per million have hypoparathyroidism. Most people get this disease from having a thryoidectomy which I have had in the past. Luckily it can be controlled with the medication of a calcium supplement.

I was diagnosed with IH in March of 2007. Anyone else around here have it/know someone who does?

If you look it up you will see that they says there is no known cause. That;s a load of CRAP. It is caused by toxic dental materials. I have suffered from it so I KNOW. I had the acrylic removed from my mouth andit improved. Now I have lithium disilicate crowns that are KNOWN to be toxic. Look at this article I found:


In vitro cytotoxic response to lithium disilicate dental ceramics.

Brackett MG, ...

So when I first born I had the umbilical chord trapped around my neck. That was then now I have a condition known as syringomyelia only the doctors said that it was to small to operate on. So I hadn't been back in a while or had another mri done so when certain situations i will not mention happened and landed me at the hospital I had a headache they took a ct scan and ...

Hi - thought this below might raise some interest - it's a consortium of top experts that joined together to find treatments and cures for ALS, funded by the EU. They have launched an online resource for all those affected - whether patients, family members, physicians, nurses, experts, or the business community involved with financial backing medical projects. Would love to know thoughts.

Here is the press release on the announcement:
MitoTarget Launches New Online ...