by Giulia » Mon Dec 17, 2012 12:10 pm
My two cents as a patient.
The problem with "Learning disability" is that the term is very misleading.
In UK, "learning disability" is the equivalent word for MR.
But in American English, "learning disability" means a learning disorder like dyslexia, dyspraxia, dyscalculia... but overall intelligence is more often than not preserved.
So, for me, renaming the forum "Learning disability" will bring more confusion than help.
Let be clear that at the international level, people use the American terminology : members from outside the UK and members from the UK will not easily understand each other if we use the term "learning disability", as they refer at different definitions in UK and outside the UK.
For this reason, I am very wary at renaming the forum "Learning disability". We have to account of people who are not in the UK, therefore, the definitions of the term "learning disability" at the level of UK and at the international level to understand each other.
I tell you this because once, I said to a doctor that I have a Maths Learning Disability (along with ADHD and my hearing impairment). The doctor was from UK and he was not used with the international terminology.
Well, we had a misunderstanding because I was using the American terminology to disclose my condition, whereas the doctor was using the British terminology. The doctor worried about my capacity to consent, so he had to have a (lengthy) chat with me before he realized that I used the American terminology whereas he used the British terminology (I had also to explain to him that I use the American terminology).
So, we have to be careful about such misunderstandings on a forum. Even if we have members from the UK, we also have members from outside the UK, so we have to be careful about such a problem.
What I can propose is "intellectual disability" or "intellectual deficiency" because these terms are specific enough to avoid confusion between the American and British terminology and yet, members don't feel insulted.
Even if "mental retardation" is a condition like diabetes or asthma are conditions : it's absolutely not a character flaw to have mental retardation or intellectual disability, like it's not a character flaw to have diabetes or asthma.
"Developmental disorder" is again, far too broad to be helpful : ADHD and ASD are developmental disorders but intelligence can be preserved.
For this reason, I am very wary about this term to rename the forum.
"trisomy 21", Rett, Prader-Willi syndrome are specific conditions leading to intellectual disability, but a forum for only these conditions will be way too specific.
Here are my 0.02$. They worth what they worth, but hope it gives food for thought.
Take care
Giulia, adult
dx: ADHD, ODD, SPD, Maths LD, dyspraxia and Single Sided Deafness by brain injury.
tx: methylphenidate