This should probably be under the Greif and Loss forum but trying to catch anyone's eye to the HD fourm.
Today is the anniversary of my sisters death. She was 43 and died from complications fo Huntington's disease just a few years ago. It is a devestating dibilitating disease. She lived with it for 11 years or so.
I cared for her for several years before she died. Fed her, bathed her, took her to appointments, carried her to bed and to the bathroom, cleaned her soiled body, held her when she cried for lack of anything more useful to do for her comfort.
But she left me alone now with no family at all. I gave up most activities to care for her and have been hard pressed to get them back into my life. Don't get me wrong, I would do it all many many times over to have her back again, but would not for her suffering.
I miss you Debbie,
cJo