Ok seeing as I spent an hour typing out a post and submitted it but I lost it due to being asked to log in again on posting and found the post disappeared I will start again but with a far shorter post.
I have been very unwell for 2 years. It all started out of the blue when I was happy and worry free. I had a panic attack due to my heart beating very strongly and out of sync one day for no reason whatsoever.
Since then I have had most of the symptoms I had back then 24/7 and I will list them here:
Symptoms ive had 24/7 ever since:
-bad fatigue
-feel weak and breathless
-strong out of sync heartbeat
-adrenaline rushing around my arms
-head pressure
-chest pain mostly right side but also left
-chest pressure like someones squishing my heart and lungs with their hand
-dizziness
-weird vision
-derealization
-tinnitus. this started a year ago for no reason and is THE WORST.
-very strong empathy for others (i used to have this but its got far stronger)
-off balance when i walk
-dizzy and out of breathe upon standing
-my vision overwhelms me in places like supermarkets when staring at the shelves. Like its too much information being taken in at once.
-want to sleep all the time and can sleep for an entire 24 hours if i wish.
Here are the symptoms i get now and then:
-pins and needles in both legs from feet to knees (had this for the first 6 months)
-hard to swallow (first 3 months)
-right wrist pain (comes and goes)
-fear of dying (this went away after the first 6 months or so as i realize after all the tests i am not going to die).
Please bare in mind that I don't feel anxious or any fear anymore. I didn't feel that way before I got ill two years ago and only felt like it for a few months at the start as i thought i was seriously ill. I know i am not now and I dont worry about stuff really.
The symptoms last from waking to falling asleep and there is no trigger at all. I never get a break and I can't go on much longer.
When I first got ill this is what the tests found:
Holter monitor found a "significant amount of ectopics" as the cardiologist put it and said i have to live with it.
Blood tests found very low vitamin D, low folic acid and slightly raised white blood cells.
Everything else including MRI scans, ECGs, stress test and blood tests showed up fine.
I got tried on propanolol twice but gave me even worse migraines and didnt help the symptoms. Then tried on atenalol which did the same. Then got tried on sertraline which resulted in me visiting the mental health team in the hospital for the first time in my life. I was crying then laughing hysterically and kept switching back and forth after about 6 days of taking them. Parents rushed me to the hospital and they said stop taking them youre having a bad reaction and gave me some valium which really helped. I returned to my doc and he was more annoyed that i stopped taking them but he didnt see just how bad i was and the hospital docs dont say stop taking it for no reason.
I got tried on CBT on the phone and it was useless. Every call the guy would insist i must wake up fine but then have a negative thought which would trigger the symptoms. I tried explaining I was like it when I wake up even before I have time to have a negative thought. He wouldnt listen and after a few calls I felt like I was on one of those secret camera shows as it was ridiculous. It only made me more irritable.
I returned to my doc and he said "do you actually think any part of you is ok?". It was from then on I lost all faith in the NHS. I stopped going completely. I felt extremely let down. Before getting ill 2 years ago I hadnt been to see a doc for 7 years. I am not a health worrier. I dont even want to see one now to be honest. I know im not dying so i am not looking for reasons to think i am.
When i first got ill they thought i had alcohol withdrawel symptoms!! even though i had been a light drinker for a year due to a new 6 day a week job. Then I was diagnosed with anxiety and told to quit alcohol, cigarettes and caffiene. I have not touched all 3 since so that alone shows that I am not making this stuff up. I was addicted to the last two so it wasn't something I would have done out of choice.
After a year tinnitus came out of the blue and there was no loud sound cause. Its 24/7 and is hell.
A year into being unwell my girlfriend left me. I found out she cheated on me during the time I was waiting for my MRI results. This has led to depression. She then accused me of loads of stuff i never did and blamed the entire world on me and told me i embarrassed her. This story will be for another day in the relationship forum but lets just say its made me even more ill than i was.
So yeah I am at my wits end. Apart from 6 days of Sertraline and about 2 weeks of beta blockers and 4 weeks of ridiculous phone therapy I have struggled on alone.
I am now running out of strength and soon will be bed ridden if this keeps on much longer. I am seriously close to giving up my job as im absolutely exhausted and all i do is sit down and watch people (security guard). I am lucky i have such a non active job as i would have had to quit work 2 years ago.
I did try to go down the thyroid problem route as my mum, 2 uncles, grandmother and sister all had similar points in their lives close to my age where they had a period of 2-4 years of feeling very unwell and having my symptoms but they tested clear for thyroid problems all the way through and the docs just laughed them off and said it was stress and people called them crazy. Then on the 5-6 blood test they each suddenly tested positive and were all cured when treated for it. I told this to the docs I saw but they got offended like I was trying to tell them what to do and immediately stopped listening to me so I stopped. I have been tested 3 times for it so far and came back normal each time.
My vitamin D is still very low and so is my folic acid.
I have a few questions I would really that I need help with:
Do you think I have GAD? I am asking because I feel like the docs just fobbed me off to get rid of me.
Can I have GAD without feeling anxious or worrying? It seriously came out of the blue and I feel fine mentally I just want to feel ok again for the first time in 2 years.
Can derealization be cured? I am sick and tried of living in my own bubble and the world looking different.
Can tinnitus be caused by GAD?
Is there any treatment that will help me? I dont think therapy will cut it at the moment as I dont have months of strength left.
Are there any specialists who deal with GAD who I can see?
Will I ever be me again?
I really need help as I honestly cant suffer like this much longer. I dont have the physical strength for it. I just want to see someone who will take me seriously, have some answers and treat me.
Thanks for any help you can offer