I'm still reading the research gate article!....thought I'd reached bottom of page but realised there's loads more pages..I wonder if its safe to download on my iPad to read?.... many of the examples explain so much for me over my life!
QUOTE "I feel like I'm stuck inside a body that doesn't belong to me" UNQUOTE
- most of us have felt this since the body first developed neurological difficulties and had to start using a wheelchair...this is probably what triggered the creation of 'Maddie'.
The problem was when Maddie started to dissolve our 'insiders' still didn't feel it was their body!
QUOTE
'Whenever I am in sensory overload it feels like my bodily functions like
walking, reacting to people in a crowd, watching out for objects in the way while
walking are sep[a]rated from my personality so that I don't have to make
conscious decisions about it because my working memory cannot process these
AND the sensory overload. I feel dismember[ed] from my body" UNQUOTE
I realise now no-one specifically taught us how to compensate for the difficulties we were experiencing with balance and co-ordination. Insiders would come out and work things out themselves...some more than others depending on how often they 'came out' and whether they fronted properly..like a proper switch or not...
We know from Maddie's diary she was told by Neuro they didn't know what had caused and it would cost them too much to test for everything she basically had to go home and get used to the wheelchair...I think 'Maddie' never got past that stage in her head. We only walked (although still with walking aids to help us balance) when the brother was around because he triggered 'his sister' (Teen S/Yuna) and always has done. 'Maddie' was originally just a social media persona/public face mask.
Somehow this time (last year the mini stroke) as we all knew about each other were all instantly at the same level of 'being affected' by it and with a more structured rehab are starting to come together and realise sometimes in moments of clarity ... 'actually this is our body' ..and when we're most dissociated is when we're dealing with high levels of pain, fatigue, Tinnitus or often all 3 together! ..its triggering 'sensory overload' almost constantly!
I wish someone would find a cure for Tinnitus! but it probably doesn't get as much funding as stuff like cancer and covid etc

...I'm sure there wouldn't be nearly half as much dissociation if didn't have the constant noise from the T to cope with... doesn't mix well with autism and a sound sensitive brain!