Saw my file

I saw my file at the group home today and my diagnosis was schzophrenia. Given by the medical NP that has never talked to me a day in my life that I have been here for almost three years. I was so angry. I went into the office and said thos is NOT my diagnosis. I want it off my chart. She said well you can't just change it because you don't want it on there. So my psychologist said she would write a diagnosis up. So it's all good. What makes me angry is that a medical NP can diagnose me something without ever speaking to me about it. I dont talk the air like other people here do and I dont me that as disrespectful. I just dont.

You mean an alter? Yeah they are really quick to diagnose without knowing what you are dealing with. I dont want something like schizophrenia on my record. I dont even want DID on there but I want the right diagnosis. If I was ever hospitalized I would not want them treating me for a disorder I dont have.

I am sorry this happened to you. I am glad your psychologist is going to help set it all straight.

Thanks guys

Now they are saying what my psychologist says doesnt matter. Looked at an apartment soon. So maybe soon I will not have to worry about it but I am very angry.

How I've understood it, diagnoses are never removed. Some doctor at some point saw symptoms they thought was something, if symptoms match enough with the dx they're thinking, they write it down. You can have new diagnoses, but old ones won't still be removed. At least that's how it is in my country.

I have been dx'd with BPD, which I don't think I have, and which is common misdiagnose for someone with DID. Actually majority of people with DID do have borderline symptoms, to the point of dx if tested, or at least score high. It doesn't still mean we have it, since it's just wrongly understood OSDD/DID then, many symptoms look the same. Now I have both dxs, OSDD and DID, and BPD is still there. So the fact it won't be taken off from your papers is normal and OK. What's important is that if they do any kind of treatments etc. they need to do it with what you actually have.

False BPD dx doesn't really matter, but schizophrenia is different, because it is treated pretty much the opposite ways than DID. I don't know what people with schizophrenia do in therapy for instance, but in every day life, it is very different if other parts are gonna be treated like people or if they are treated like they'd be delusion. On the other hand, if your others don't come out as themselves to the workers, but are seen more thru you, it doesn't matter as much. Still, medication etc. is very different, heavy anti psychotics are more of a problem than a solution to someone with DID, when with schizophrenia they totally help.

Some diagnoses are different, like depression. If you are once diagnosed with it, it doesn't mean you will always have it, but no one is gonna remove it from your papers if you once did have it. I guess it's more complicated with these disorders that are always long term.

Who is in charge of your treatment in the end? There can not be many different decision makers for you, or your treatment will be all over the place.

No one that has never discussed my mental health with me should be able to diagnose me with a mental illness especially when they are just a np and not even a psychiatric np. Isn't that against the law? I have medical NP that see's me. The one who diagnosed me schizophrenia for no d*mn reason. I have a medical doctor who has also diagnosed my schizo effective for NO reason. These are people I speak to every 3 months and have NEVER spoken to me about mental health problems. I have a Psychologist that spends 80 min a week with me. She diagnosed me DDNOS and wrote that to the group home. They said it wasn't enough. Then I have a Psychiatric nurse practioner who see's me once a month for meds. I spoke with him yesterday about this and agrees with that diagnosis but the group home is giving me the run around. Shouldn't the person that see's me the most have the most reliable input? So know I've had to call my psychiatric np to talk to my Psychologist so everybody can be on the same page. I'm so p*ssed!

A word in a file does not make a diagnosis. Consider this a case of "pick your battles"; is this word in this file important? From what you have said, this is your group home file and you are moving out into your own apartment. (Yay!) If it would help you to get your apartment, you could perhaps use that word to your advantage. Document in writing, in a record you keep secure (online somewhere?): the date you saw the file, what it contained, your objection to the incorrect information, and what the group home staff did about your objection. Use this as evidence why the group home is not an appropriate placement for you: they are not providing appropriate care for your condition, they are careless and indifferent, and they are not following proper procedures.

Code: Select all

When an error is made in a medical record entry, proper error correction procedures must be followed.

    Draw line through entry (thin pen line). ...
    Initial and date the entry.
    State the reason for the error (i.e. in the margin or above the note if room).
    Document the correct information.

Source: AHIMA's Long-Term Care Health Information Practice and Documentation Guidelines

Does HIPAA apply (are you in the USA)? Under HIPAA you have the right to have errors corrected. You have now documented that your right was blatantly disregarded. Once you are safely out of the group home you can report them to the proper authority (state attorney general) and they may be fined. That will motivate them to clean up their act so they don't do the same to other residents.

Well its not 100% set in stone I am moving to an apt. It is likely though. It wont help me get into the apt anymore than any other diagnosis. I just dont want that diagnosis following me anywhere. I do love in the USA. How can I get this resolved?