That's ok, we seem to get it in intense patches like an attack of sciatica will suddenly come on and for the first week we're in agony (or rather I - Sioux am, Kit rarely appears unless the body is in a fit enough state to do the activity she wants). The second week is usually less painful then the body gets more or less back to where it was and Kit comes back.
Winter tends to be painful as the freezing weather makes the joints swell but we've had some relief with it being so mild this last week which is probably what's helped the sciatica recover too as the inflammation would have gone down quicker (without additional inflammation from an arthritis flare up).
We do seem to feel less fragmented if we have something else to focus on, probably the reason Kit likes to get lost in the video games, and we're trying to make sure we have enough to survive if Brexit is bad, if snow comes at the same time (last year we had bad snow end of March/beginning of April causing food delivery delays to local small shops) and at some point this year we're gonna get hit with the changeover to UC (Universal Credit) and face at least 2 months with no money but full rent to find (plus other bills!) while they sort that out and we lose about £250 a month, so are trying to get any more expensive equipment/furniture we need before that too.
Personally when we're having the attacks there's not much difference in our physical disability levels than Maddies and I think some of the problem for Kit is her mind seems to be trapped in the past and she seems to think she's still much younger and blames 'Maddie' for damaging the body beyond repair so we can no longer go hiking, ride bikes normally etc.
Problem is due to co-ordination difficulties the body has always had to some extent, none of us have ever mastered driving! .. so Kit would have to deal with going on public transport to get anywhere which is just as much of a barrier to getting anywhere due to her intense phobia's and sensory issues!
Sometimes it feels like we're constantly locked in battle and life is exhausting just getting through the day!!