DID vs Epilepsy

maybe I'm just riding on the denial train.

but...... could DID be a wrong diagnosis and it's just epilepsy?

hoothoot bingbingbingbing cupetsheecupetcheecupetcheecupetchee bingbingbingbing
that was the denial train driving thru
if you want to be sure, why not have an EEG?
(saying that it doesnt count because one of your others might have it doesnt count)

so you're saying there's a chance?

LOL.

I was diagnosed with Epilepsy as a kid even though it didn't show on an EEG. Now I only get those same symptoms of totally losing time if I'm on certain medications. I had another EEG 8 years ago when I was in hospital and the symptoms returned and again it showed nothing. My psychiatrist in inpatient said it was dissociation but it was different. I couldn't follow a conversation because there were so many blackouts. Who can say?
C.

saying that you might have both and that it is relatively easy to check.
so you can't go back to this one when you feel denial
then you can still go for crazy, attention seeking, schizophrenic, bipolar, alzheimers, compulsive lying etc
epilepsy is not a good one for denial. it doenst fit enough symptoms.

we've been checked for epilepsy twice, as a child and as part of differential diagnostics as an adult.
why not take diff dx seriously and test for everything until you are sure...

Are you thinking "maybe it's just epilepsy?" Can you talk about why that idea appeals to you? Would "just" epilepsy be better? Less shameful? Not anyone's fault? (One suspected cause of epilepsy is traumatic brain injury in early childhood or infancy, so yet another pointer to negligence or abuse.)

ColouredLeaves wrote:I was diagnosed with Epilepsy as a kid even though it didn't show on an EEG. Now I only get those same symptoms of totally losing time if I'm on certain medications. I had another EEG 8 years ago when I was in hospital and the symptoms returned and again it showed nothing. My psychiatrist in inpatient said it was dissociation but it was different. I couldn't follow a conversation because there were so many blackouts. Who can say?
C.

My son was Dx with conversion disorder, he too would have full seizures and he ended up in ICU for 3 days trying to figure out what is going on.

Psychogenic nonepileptic seizures (PNES), or pseudoseizures are paroxysmal episodes that resemble and are often misdiagnosed as epileptic seizures; however, PNES are psychological (i.e., emotional, stress-related) in origin. Paroxysmal nonepileptic episodes can be either organic or psychogenic

Una+ wrote:Are you thinking "maybe it's just epilepsy?" Can you talk about why that idea appeals to you? Would "just" epilepsy be better? Less shameful? Not anyone's fault? (One suspected cause of epilepsy is traumatic brain injury in early childhood or infancy, so yet another pointer to negligence or abuse.)

well yeah all those things. it would be

real instead of imagined
medical instead of psychological
treated with medication instead of messy exhausting therapy
something I could tell people instead of some thing I hide

some thing I didn't have to be ashamed of. something that wasn't tied in to my tragic backstory.

something normal people have

Good luck BeccaBee in getting an accurate diagnosis! I had a trauma specialist tell me I had DID. I had another doctor tell me my symptoms were caused by epilepsy - even though all my EEGs have been normal.

Please remember that a normal EEG cannot rule out Epilepsy especially if no seizure is occuring during the test. Also, seizures can occur so deep in the brain that they are not detectable during a routine EEG.

If epilepsy is a possible diagnosis for you, I would recommend seeing an Epileptologist, not a general Neurologist.

I agree with you, I would rather have a diagnosis of epilepsy.