Doily wrote:I feel super awful. Spent 2 weeks in the ward where I always feel better but since I was discharged I've been feeling worse and worse. But it costs money to be there and I need To save money To feel safer. I'm such a poor sore loser.
Sorry to hear that...we feel safer at home where its just us and the dog, some others don't feel able to come out at all while ever there are other people about.
I had a break for a couple of days, I was exhausted trying to process new information and the constant Tinnitus... Suki took over the front and looked after Mr Woof and Little Susie.
We got some new information from the Stroke group and emailed our specialist, we got the confirmation back this morning (though they say they did tell us this information verbally at the time of the stroke) but apparently this last episode during the pandemic affected the Thalamus and we have 'Vascular Thalamic Amnesia' They didn't know to what extent it would affect us at the beginning but they knew it had been in the Thalamus because there was a new white spot there on the MRI.
The Thalamus can affect long or short term memory, cause a' shift in personality' and affect attention and emotional responses.which would explain why we've been 'all over the place' and so disorganised...add onto that us being autistic and having the typical peri issues of brain fog, fatigue and memory issues on top and there's no wonder!
In fact I think we've only got through it because we
can switch alters or temporarily blend if the one fronting is struggling. I say that because the people in the stroke group (who aren't DID just your average NT person) seem to be struggling a lot more in some respects with huge amounts of medication to help them cope!..I guess because it the same person up front all the time and they don't have other alters to switch with so never get a break?
Jay