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Diagnosed with somatic type dd, but i dont have it?

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Diagnosed with somatic type dd, but i dont have it?

Postby j1 » Tue Aug 28, 2007 12:08 pm

Hi ive just found this forum and it, or the ple in here could seriously help me. Ive recently well about 4 mths ago found out after applying for my medical records that i was labelled with delusional parasitosis, this label was put on my records in 1997. I have a infection Hpv, which they said i could not pass to others at work etc. I suffer with hives, which my g.p says il never find out what they are as there probably an allergy. I suffer from boils usually on the face and scalp this was diagnosed as scalp folliculitus and acne and was treated with antibiotics, i still have it nearly 10 yrs later. I believe i have another infection undiagnosed which is easily passed to other pple causing spots and boils and hives itching, after nearly ten years of passing this infection to hundreds of others mainly through work im now lost as to what to do. Ive never had any phycological, mental health testing, i have no phobias apart from heights, and im still passing this infection on. As ive been labelled delusional what would be the first step, im seriously thinking about going to a phycologist or mental health expert for assesment as i know im not crazy. Im sick of being told its all in my head. I really need some advice can anyone help?? thanks
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Postby bsc » Tue Aug 28, 2007 5:44 pm

I just looked up delusional parasitosis. From what I understand, I think you ought to seek help from a mental health professional, as well as a good dermatoligist. Maybe they could coordinate helping you.

Do you really have evidence that you are passing your physical problems on to others? Do you have any friends or relatives that you are always in contact with, that could verify that you are not causing them any problems??

See someone soon. Good Luck.
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Postby Tara » Wed Aug 29, 2007 9:24 pm

Incidentally, I know someone whose GP was rather hasty with giving "delusional parasitosis" label (and attempt treatment with antidepressant) for something that was quite likely to be genuine infestation. This person started having issues after visiting a 3rd world country and bringing some household items back with her, her skin lesions were definitely real and there were very real little insects around. Some of her friends and relatives did get similar infestations and person in question is someone who is really down to earth and not prone to jumping to conclusions. There were also further consultations with dermatologists and insect biologists which confirmed the possibility of infestation.

That being said, I hope you won't mind if I give you very honest opinion on your situation as you describe it. I do believe you have real skin issues and this can be very unsettling - it affects our appearance and self-esteem, and in the case of conditions which involve rashes and itching it can seriously affect person's mental state in a similar way chronic pain does. But, there are some statements you make that are red flag to me - you think you are passing this undiagnosed infection to many other people. Could you please elaborate how exactly did you come to this conclusion? Did anyone actually mention this possibility to you?

I think that getting mental health professional involved won't do you any harm - it might help you deal with your already diagnosed skin conditions and if it turns out that you are overreacting about this presumed undiagnosed one, please try to have open mind and listen to other people's opinions. Unfortunately, the whole irony of having delusional ideas is that person holding them does not have insight into the possibility of those ideas not being compatible with reality...
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Update, delusional or not?

Postby j1 » Tue Nov 06, 2007 6:35 pm

Ok hi all, after discovering my label of dd after seeing my records, im well very angry as i know for a fact i have an infectious disease, it has made me more determined to prove im right and have this label removed, after doing alot of research and jogging my memory over the past ten years, i am now v close to my goal. When i was diagnosed with hpv the clinic told me that there was no way that this could be passed to others in the workplace, which i accepted but told them i must have another type of infection undiagnosed which is being passed to others easily. Again they said i was worrying over nothing. I have now discovered that it can be passed to others even throgh shaking hands or from objects that i have handled even though its only supposed to be sexually transmitted? I also now know that when i started this job my boss caught a viral infection which caused a wart on his finger. Im now 99% sure my infectious disease is hpv. Tommorrow im having a chat with my boss about it to hopefully confirm my findings. When i get confirmation im going to seek legal advice to have the label removed as there was no foundation for it in the first place. What puzzles me is why has my body not overcome this virus after 10 yrs? I live reasonably healthy eat quite well so im concerned about this. My main priority is to prove that for the last ten years i have been passing this on to others and that its not an irrational belief but fact. My first 2 yrs with this infection was hell, the symptoms multiple boils rashes bubbles of blood under the skin, and doctors telling me it was nt infectious almost drove me to suicide. Also when my problems started in 1997 after sex with a girl i know my doctor told me it was unlikely to be sexually transmitted and took me away from the idea, i was right all along. If im passing this on to others how can i be labelled with dd? Doctors are crazier than the patients.
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Postby Xezlec » Sun Nov 25, 2007 3:19 am

Please don't get angry. And please don't be determined to prove that you are right. It doesn't really matter that much. Obsessing over the fact that someone accidentally diagnosed you with something you don't have could make you lose your job and friends. I've been misdiagnosed with a few things in my time (turns out I never actually had ADD, for example), and I never cared. Just let it be.

But for that matter, how do you know you don't have DD? I mean, OK, you probably don't, but if you have so many real infectious diseases, don't you think that would tend to make a person start overreacting a little bit after a while? Maybe you have both real diseases AND a mild case of DD at the same time. If I had to live with such a scary disease for a long time, I'd be seeing a shrink regardless, just to stay sane!

I'd say go see someone, EVEN THOUGH you're fine. With that many medical problems to worry about, you could have trouble STAYING sane without at least a little help.
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