pastoralchuckle wrote:Thanks for your reply. I have been emailing his pdoc everything that has been going on. I asked the doc if there was anything he could tell me without breaching patient confidentiality. The only time he's ever written back, he wrote
"I cannot tell you anything, but I can read your emails." I even tried asking him questions, that I got from a NAMI support group, that aren't supposed to breach confidentiality, but he didn't respond to those.
He can't unless your husband gives him permission to and your husband is unlikely to do that given how psychotic and paranoid he is.
But the statement he made means he expects your hubs to act as you describe, and understands exactly what you are saying, and 'keep those emails coming'. LOL.
One. Your husband is very unlikely to be taking his medication at the recommended dose, or often enough, to have any impact on his symptoms. I seriously doubt that 'the medications aren't working' in the sense that, 'this medication doesn't put a dent in his symptoms'. There is a slight possibility that he needs a different medication, but given his paranoia it's very likely he simply isn't taking the one he is prescribed, often enough or the right dose. My husband had a visit with the pdoc last Friday and when I asked him what he said about all this, he told me "For some reason, she just doesn't want you to know. If this keeps making the situation worse, and medications don't help, then maybe you should separate."
I seriously doubt the doc really said that. But if a patient is getting really agitated and paranoid, the doc may hint at the idea that it might be better if you left the house, for your own sake, so you aren't getting constantly yelled at or...having your...lady parts...inspected...and your husband may be get worse. His symptoms do seem to be increasing.
The doctor may feel, rightly so, that while your husband is refusing to take medication, or take it appropriately, or effectively, that your life might be a little bit less hellacious if you stay somewhere else for a while.
As odd as it sounds, sometimes that helps to get the person to take their medication more appropriately.
As odd as it sounds, I suspect your husband loves you dearly. There's a chance that you leaving, if it's coupled with a simple statement, ''I can come back when your medication is working better. You may need a change of dose or a different medication. When you work it out with your doctor, and your symptoms are less, I would love to be back in my home''. Just very calm and pleasant, warm and kind. Don't get baited into an argument. A while ago, the pdoc tried to get him to increase the meds, but it had a sedating effect on him, which husband believes can be dangerous if you're a person who is regularly welding and using power tools. He said:
"It worked for two weeks, then suddenly didn't one friday night? This has happened before as well. I don't believe that is how these "disorders" work.
[i]Um...no. You're right. It may be how it seems to your husband, though. Believe it or not they often CAN NOT UNDERSTAND why their symptoms are worse or better and they very often can't connect cause to effect like not taking the medication and they get sicker - what seems obvious to us often is not at all obvious to them...often they can't even remember that they didn't take their medication.
Psychotic disorders are far more about how the brain processes information, than about delusions or hallucinations. Delusions (strange ideas) and hallucinations (seeing or hearing things that 'aren't there') are actually a RESULT of the broader, more underlying aspects of the illness. They're like the tip of an iceberg. Schizophrenia actually is a brain disease, a cognitive disease that affects thinking, evaluating and processing information, making decisions. The delusions and hallucinations are basically the 'Oh Sh**!' reaction of the brain that is having trouble evaluating information, processing information. I have taken many types of medications to find the right one, so what if it's the minimum dose?"[/i] And since he has tried 5 of them already, he says he is not going to try another one he doesn't need. Problem is, he never took them for more than 2 weeks. This is the only one he has taken for any length of time.
Yeah but here's the problem. He isn't taking enough. Classic.
Here's how it works. If he takes the medication in the right amount, he won't be able to tell 'what is really going on'. He will be letting himself open to just stand there while his wife sleeping with men everywhere, all the time. He'll be letting his guard down.
Too...I hate to tell you this, but many people prefer the charged up, excited feeling of paranoia. It's often kind of a feeling of omnipotence, of power, that you can see what's REALLY going on. Compared to that feeling, being on medication is - well - it's awful. Even leaving aside for the moment, the not exactly wonderful news - 'you're sick, your brain is out of whack, you have a mental illness, you're not as good as everyone else, everything you think is wrong'.
Paranoia can be almost like a high, and it can be very addictive. It's as if a veil has been stripped away and suddenly you know this great and incredible truth.
It's actually as if someone is coming up to you and saying, 'You don't have a husband, you don't have a job, everything that you think is real, everything that makes you feel alive, alert, aware, plugged into this new incredible knowledge, is all false'. With no apology, nothing. Just, everything you know to be true is wrong. This euphoria you feel is just all an illusion.
Take medication? Hell no, and give all this up? Uh uh! People will even tolerate all sorts of horrible symptoms, all sorts of hell, just for a few moments of that omnipotent feeling. I wish I had been able to avoid the confrontation but he was in my face with it just about every two weeks. We'd have a nice calm time for a few weeks, then, something would stress him out, or he'd listen to some recording and that would set him off.
What kind of things stress him?
You know...some people can stick with the person through the 'I won't take medication' stage. It mostly depends on how severe their symptoms are, but there are techniques.
It's very hard when the delusions are directed at you, but there are techniques. They don't always work, but sometimes they do. Sometimes you have a better chance of the person finally accepting appropriate treatment if you are out of the house, sometimes you have no choice but to leave, sometimes it works ok to stay and you can actually make some head way
Sometimes you can build an alliance with a paranoid person. Sometimes just for a few months, sometimes for longer. It's tough sledding, but I've done it with some people sometimes, and I'm just a fat old grey haired old lady. If I can do it, anyone can do it. it's a risk, of course. Paranoia can be dangerous.
Besides the ah...inspections, it doesn't sound like he's done anything dangerous yet. In a way, he's suggesting that you may UNKNOWINGLY be sleeping with all these ghost guys. What sounds really awful to you, still has a little glimmer to me.
You might still attempt to build an alliance, but listen to your gut feelings and stay out if it's getting too bad. As far as returning after leaving, I'd just try keeping in touch with him, and asking him 'How do you feel about me coming home? I miss you'.
If your instincts are telling you you're better off somewhere else, listen to that instinct. If it seems like by staying home, you're preventing the inevitable (the nuisance crime that gets him in front of a judge who orders him to take medication appropriately, for example - the nuisance crime that sends the family into tears of relief) then you might be better away from there and letting nature taking its course. Then, he wouldn't talk to me for a few days or maybe a week. I never bought in to his delusions and I tried to reason with him
Don't try to reason with him!!!!!! Never argue with a symptom!
Each person is different, but you can find ways, little baby steps, that build an alliance between you and him. Since he is taking medication, he may partially understand, at some times (maybe not all the time), that he's ill. If he says, 'I think you're sleeping with another man', you could try saying, 'Infidelity is horrible', or 'I believe married people should be loyal to each other'. Keep it a very short, simple statement of your belief. Don't contradict his beliefs.
I would NOT consider reasonable, non-revolting, non-dangerous activities that he asks you to do, as 'feeding the delusion' or 'agreeing with the delusion'. For example, I would say, 'I can close the curtains, that's cool', but I would say, 'Sorry, I can't go across the hall and beat up our neighbor for you'. And I would give a reasonable answer why. 'I can't go because I don't want to get arrested'.
I would not be drawn into a debate about a delusion. SEE IF YOU CAN simply withdraw your attention from him, in a calm way, when he starts that, and just influence his behavior a little bit. 'I don't want to talk about this, you always yell at me when we talk about this'. See if by very gently withdrawing your attention (it can be as simple as 'I will talk to you later'), you can just change his behavior a little bit.
Keep in mind that a person with this illness can get to be a little bit of a bully, it's almost like a little tantrum. It's not due to meanness or being a jerk, it's simply that the person is having such an impossible time trying to deal with his delusions and hallucinations, that he can't figure out anything else to do. You have to have a way to set some boundaries.
As an example, when one of my folks would give me verbal threats, I would simply say, 'That is a very hurtful thing to say' and give him about a two hour 'time out'. Nothing mean, no yelling, just, bye bye, see ya later. And he got it. It took a lot of repetition, but he got it. You threaten me, the endless flow of cookies and cake dries up for a while. You don't threaten me, and life is good. You want 6 cheeseburgers? There they are. You threaten to kill my cat, I go do something else.
Sometimes, when a person gets really s**tty with you, all they are saying is, 'I need a break, my brain is exhausted'. And so you go away, and they are doing better later. They have no control over how severe their symptoms are sometimes, and the severity of them can vary from moment to moment.
Remember you are dealing with someone who has a very hard time thinking, concentrating, and taking 2 and 2 and getting 4. Because about 10,000 things are getting thrown at them at once. Their brain just is not good at organizing all the incoming information. but you can't reason with an irrational person.
Bingo!!!! The night he threw me out, he actually asked me to leave because his son was there and he said he couldn't sleep with the both of us there, and he needed to sleep.
Awwww! He was and and still is frightened of me. I calmly left that night. The next night when I tried to go back, he wouldn't let me in.
Might need to just give it some time. Being really calm and relaxed helps. Actually I find saying to myself, 'okay, smithy, this person needs you to be really calm right now, this is gonna work, and you know it, we've been here before, so just get into the groove, just warm, steady and in control right now, stay cool, stay cool, don't get scared, don't get upset, just cool cool cool', it's kind of a meditation, like 'still your mind, focus on this'. Since, he has been texting, calling, you name it, to try to get me to tell the truth.
Awwww!Today, he says he's done fighting, that what he knows now is mostly the truth. He's talking about boxing my things up and divorce. My whole world has been turned upside down. I wish there was something I could do, but I know that I have to stay away for the both of us.