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Hi all

Conversion Disorder message board, open discussion, and online support group.

Hi all

Postby TheWhiteButterfly » Wed Nov 05, 2008 10:54 pm

hi,
im new just registered after finding this and i cant believe other people have conversion disorder :D :D

not that i want other people to have this but am so happy that its not just me, mine started in may of this year i lost the feeling in my left hand it started with pins and needles in the tips of my fingers and gradually got worse in a few days so much it was like i had lost my left arm, it then went to my legs, i woke up one morning not being able to move and it scared the hell out of me, i had seen my dr previous to that morning and she thought i had MS and was seeing me every couple of days, that morning i went to hospital where i stayed there for 4 weeks, i had mri scans nerve conductor tests, several tests with neurologists i felt like a hamster and then a lumbar puncture, they did find some hotspots on my brain but they wasnt to concerned, i had a psychiatrist come see me whilst i was in hospital although i didnt want that but she turned out the best thing for me i poured my heart out to her and now see her every few weeks, i got a call off my dr 2 weeks ago 5 months after this started and my psychiatrist had spoken to him and they diagnosed conversion disorder, i was so happy i had a diagnosis finally, i see physio every week but am finding that hard right now as my hips are starting to get bad with the not being able to walk so am putting strain on my hips and with falls i have it makes it worse, what im finding now is my memory is rubbish and it use to be excellent, i would be interested if anyone is getting problems with memory with this conversion disorder, i did think i was mad and am finding it hard to come to terms with this as i do not understand how my brain can do this to my body, i have it explained to me all the time and the brain is a very powerful part of you but to me i just dont understand, i suffer from depression also and ocd and have had a lot of stress in my life and apparantly this has done it and my body has packed up as if to say enough is enough, i have to admit each day that comes i get better with understanding this but am sad cos i cannot walk, i use crutches now but was in a wheel chair which made me worse, but the crutches make me feel a little human, i got an x ray which the physio is arranging so i should be able to know whats going on with them, anyway just had to post this cos finally i have found this forum and i now know its just not me.

sarah
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Postby jasmin » Thu Nov 06, 2008 9:40 pm

Hi, Sarah! Welcome to the forum. I'm glad you found this place too. This isn't a very busy forum, but at least you know that there are other people like you out there now. Please feel free to come here and talk any time you like.
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Re: Hi all

Postby gee1 » Mon Jun 22, 2009 2:58 am

Hi All. I'm alittle shy. I'm new here. I sufferer from BPD, Depression,Anxiety, Psychosis and Conversion Disorder. :roll:
I'm a 35yr old female and have suffered from Mental Health labels for over 20yrs.
I find it very hard to trust peop. I mean the peop on the outside world. That sounds like I'm in prision :shock:
I can assure you I'm not or have never been in what society deems as her majertisy pleasure. (prison)
Anyway any one wanna chat? I'm quite lonely at the min. I don't believe that any body understand me out there.
Especially as I am suffering from a relapse of conversion disorder. I haven't been able to speak for 7 wks now and it is getting me down. I scream and nothing comes out.
Please somebody out there talk to me. :?:

Gee x
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Re: Hi all

Postby Chucky » Mon Jun 22, 2009 7:36 pm

Hey Gee, you sent a message to all of the moderators/admin here. i'm impressed because no-one has figured out how to do that before. Anyway, what are you doing in your life right now? - You never mentioned this. Also, what woulfd you like to do in the future? You are righ to focus on the negatives of your life, but remember the positives too, and don't allow yor life to 'stagnate'.

Kevin
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Re: Hi all

Postby gee1 » Wed Jun 24, 2009 1:34 am

Hi I am currently taking a break from college. Going back next Sept. I'm working towards doing my caring and one day I would love to be able to do my nursing. It's hard because with my current 'relapse' of CD I've been mute for nearly 8wks, my right arm is weak, I can't pick a cup up and have to drink through a straw (I feel like a little kid sometimes) I trip over my right foot, I have to eat with special cuterly and I suppose wats worst is that I have carers invading my house twice a day to help dress/shower/undress me.
I used to like going to the gym. I was very fit and went everyday. Now I have had to freeze my membership, while I recover in physio for a while.
I'm going to focus on my nursing though in the future and hope that the symtoms of CD don't get in the way too much.

Gee1 x
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Re: Hi all

Postby Chucky » Wed Jun 24, 2009 10:38 pm

I'm sad to hear all of that Gee. I have things that make my qualit of life that little bit less too. We are in less fortunate positions, but we can still achieve great things. I implore you to focus on that goal of being a nurse, and don't let anything stand in it's way. Regarding the gym, you might get back into the groove of it in the future. It's difficuklt for us to keep things up like that as they can 'wear down' the mind.

Kevin
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