neurological disorder-total insomnia

Hi, my name's Josh, I'm 25 years of age, and was perfectly healthy before all this, except for some swollen nodes under my ears that would get sore every once and a while. I have a horrible issue here and think I may have a severe neurological disorder or fatal insomnia and possibly dying. This is my third bout with this and I'll explain what's going on now and when it all started. Currently, I haven't slept in 10 days...none. It started 14 days ago with a bad night of sleep, which got worse over the next two days until the point I haven't slept in 10 days. My symptoms are constant muscle twitches, head tilt feeling, strange sensations(like tingling or numbing) on the right side of my head, feeling like I'm bring pulled to the right when I walk, and the left side of my face has a sag to it. This all started in January of 2013. I've had all kinds of tests done and nothing was found: mri, spinal fluid, ct scan, eeg, and nothing was found. I'm so scared and don't know what to do and neither do doctors. I'll explain how it started.

I had caught the flu and had it for about five days at the time. While I contacted the flu, I was also taking a pro hormone called Epistane(anti-estrogenic anabolic), which I continued. It all started on one night(the previous night I had a bad fever). I remember I fell asleep, I then woke up about 2 hours later to a door closing. As I was falling back to sleep I felt these swaying, back and forth feelings in my head. I opened my eyes and it literally felt like my brain was shaking back and forth in my head, I couldn't balance, as my body was shaky and I had to hold on to things. I would force myself to wake up fully and it would stop. Every time I tried to fall asleep that night and the next, It would happen. After that, I totally lost the ability to sleep for 3 weeks.I also had one pupil that was bigger than the other during this time. No matter how tired I was or how hard I tried I couldn't sleep. I developed severe muscle twitches and head tilt, which continue to this day. I slowly got better, little by little, after three weeks
Starting with an hour here and there, then to the point I was basically normal for 10 months, but with the twitches and
tilted feeling. I tried another hormone and anti estrogens last February and the same thing happened two weeks in. I convinced myself it was the flu before starting. I lost my sleep ability for 1 week that time, but then slowly got better. The muscle spasms and head tilt continued and other than that I felt fine and slept good. Now all of sudden I had a raging total insomnia hit me out of nowhere, but this time there was no brain or body shake feeling. I just lay there trying to sleep and start to sweat even when it's cool. Sometimes my arm will jerk to, along with the spasms. PLEASE HELP! I don't know what to do. I think I may have sporadic fatal insomnia. The only calm I get I'd that sfi is progressive, I started sleeping fine, this has been going on for 19 months, and started suddenly. I have a bad tilted feeling and feel like I need to hold the keyboard sideways when typing. My metal function seems to be getting worse too. Again, please give me your thoughts. I just want it to stop and I fear for what may be happening. I just can't sleep and my muscles keeps twitching. Hopefully it goes away this time like before and I just start sleeping again eventually, but it's something neurological and sleep just isn't possible. I know this sounds crazy, but it's 100% the truth. I was doing well and took a job overseas. My confidence, ambition, and everything else was all good. just the tilt and twitches was present, but I slept good most night.I'm so terrified here. I don't even have any family around me, which feels horrible. If something bad is happening here, which it certainly seems so, I really want to spend my last days with them. I have a great family and had a great upbringing. I just miss them so much now. I've talked with them and may take emergency leave to go back home within a couple days. May my competence still be with me to do that. This is just some mystery issue that none of those tests could identify. The only other test would be a PET or SPECT scan. I appreciate any responses very much. I do happen to get into these light dreamy states at night where I feel partially aware, but that's it. I close my eyes, then open them and it's been 1 hour later. Close them again, then another hour later, and finally, close them, open them, and it's about 3-4 hours later. This whole time I'm just in this light dreamy state that doesn't even feel like sleep. After the last time, I start to get really nervous and don't even feel tired, but wired, as if I got no sleep. I end up getting up and my eyes are so dark(circles), my eyes are bloodshot and very dry as well. That's it...no feeling of sleep, just a daze or twilight state where I'm partially aware. My mental function is declining and sleep just won't happen, no matter how tired I am. I feel like I could just collapse and die, but my brain still won't shut off.

-- Sat Jul 12, 2014 1:00 pm --

I feel that last night I finally got just a little sleep. I closed my eyes during a movie and then opened them an hour later. That groggy feeling you get after you wake up was present. After that, I closed them again and opened them to it being 1 1/2 hours later with the tv still on. I felt a little bit better mentally. Finally, I turned the tv off around 12-12:30(can't remember), and before I knew it, it was 4:30. I remember a dreamt some too. I tried to go back into my so called sleep, but couldn't even though I was still tired. I do recall smelling things that weren't there every time I woke, such as smoke or hair spray.... really weird. I don't know why I just keep losing my sleep ability. I mean, that's exactly what it is. Before all this happened with the flu, I couldn't keep myself from getting a deep sleep no matter how stressed, nervous, or whatever I was. This forces me to stay up, giving me the complete inability to sleep no matter what. I have to figure this out. This doesn't sound like sporadic fatal insomnia does it? This hasn't been progressive and my sleep got back to normal, completely, both times before this.

Sorry about your problem, I never heard of it before. BTW long posts almost never get replies. Short attention spans a lot of us have.