I've been having a really tough year. Various diagnoses over the years, various meds, no results. I ended up on this board by accident and read a little. I remember hearing about this disorder before, but I never knew what it was. What I read sparked curiosity.
So I followed the link suggested by betwixt in another thread here:
betwixt wrote:Hi, Kenny, it does sound like you could be Aspergers. Here are some more self-tests:
www.autismresearchcenter.com/tests/default.asp
www.rdos.net/eng/Aspie-quiz.php
I completed the rdos.net test and I scored 155. There is no mention on how to interpret scores, I just got a 'you are likely an aspie'. Hmm, very empirical. I was wondering if any of you 'aspies' might have insight on this kind of score... It seems high, but is it high enough to maybe rule out a coincidence? (I'll say more about what I really relate to in asperger a little lower.)
I'm tired of looking for answers as to what I may or may not have. I just want to get better already. But I don't trust the net much (90% bs?), don't trust my own bias (eg. maybe I want to have this so I scored high by relating), and my doctor, well, I trust him but I think putting my head together with his might be helpful in giving me a correct diagnosis at this point, because all else seems to have failed. Hopefully some of you can help.
Initially, 10 years ago, I was in the 'major depression' category. Went through years of trying all the anti-depressants known to man. None worked, many made things worse. This year I have been diagnosed as bipolar but I'm having a lot of trouble accepting that. There are some things that don't fit and the meds have yet to work as well, so of course that leaves me doubting. I do however acknowledge a cyclic aspect to my experience. So there may indeed be some truth to that diagnosis. But what doesn't fit with the theory might be the answer to the larger puzzle. Don't know if asperger has a cyclic aspect to moods as well.
The thing that strikes me the most in this illness is the sensitivity to stimuli. As far as I can remember I've had a hard time with sound, loud voices, cars, and in the last few years cellphone rings just drive me nuts, etc, (or I become overly stimulated by sound... listening to classical for instance can be extremely intense for me). Also have issues with temperature, and wind or humidity, as listed in the mentionned-above test. Smells, taste, check those as well. I'm easily repulsed by certain foods that smell 'bad' like, oddly enough, canteloupe or black licorice. Textures are also a problem. Ever since I was a kid I've always found the feel of certain materials aggressive to me, for example my bedspread which felt 'rough' and I hated touching it. I can't stand anything but flannel sheets. Regular white cotton sheets = scratchy.
Things relating to sound are the major issue. I have lots of trouble understanding people in live conversations, or keeping track of what is being said. I tend to zone out easily, and I get very tired after an hour or two of being with the same person. My friends all know I have a two-hour limit on socialization.
I'm a student, in the top 10% of my university, but I find it extremely difficult to focus on class more than one hour at a time. I zone out easily as well. Or suddenly really sleepy. I'll 'get it' on my own later. I learn best on my own anyway.
I spend most of my time outside of school alone, which suits me perfectly fine. I often think other people are 'weird'... like I don't belong to the same species. Humans, I don't understand them, you know? Understand them as robots sometimes. I also consider that I lack certain essential social skills. A search on 'empathy' is what lead me to this forum in the first place. I feel I lack it. I've always been in my own world, as a kid always reading books instead of playing with dolls or kids, as an adult fixated on abstract concepts and theoretical questions, still in books. Frankly, I don't like being with people much, they usually annoy me after a short while, and I am not interested in anything they have to say. I have so much trouble getting in the conversation when there are too many people and I get dizzy, forget what I wanted to say, don't know how to say what I want to say. For that reason, I have never had many friends, and maintaining relationships has always been very hard. I've recently lost a close friend who said 'being with you is like I'm not there'. Apparantly, I appear not to care.
I do. I care a lot. Sometimes I feel like it's because I'm so emotional inside that all the words get in a jumble, or the attempts at hugs or closeness turn into clumsy endeavors. Unable to be romantically attached as well. I've dated, but can't seem to relate to anyone beyond a few weeks. I seem to be unable to 'show' sensitivity and to respond correctly to the sensitivity of other. I don't know how to react to their issues, what to say to make them feel better. I know you're supposed to say something, but it just never seems to come out right. Oh, and being in all these social situation makes me nervous, anxious. I will worry all week about dinner next week-end with family, or going out with friends. I don't like being out in public at all, just want to hide. I spend a lot of time thinking about how to avoid interaction with people.
So basically, I feel as though I don't understand anyone and no one understands me. I feel very lonely but at the same time I don't want to be with anybody. I haven't spoken extensively about these specific issues with my doctor, but I have mentionned my lack of social 'ability', to which he has never really had anything to answer back and I never pressed the issue. He just says that I am gifted analytically, and that I feel the way I do because I don't partake in enough activities with others. Thing is, I have zero desire to partake in anything that isn't just with myself.
I spend half my time thinking that the way I think IS the problem. That I don't think like normal people.
Although I feel inept at dealing with people, I have no difficulty in the academic area. I excel at expressing my ideas on paper, yet I can't put two sentences together in person. I consider myself to be like a nutty scientist, always wanting to know more, always reading books, only interested in concepts not practical issues or people, never able to relax because I'm missing out on learning. I can't watch comedies on tv, or most tv shows, because I feel I'm becoming stupider in the process, since you don't learn anything new on those shows.
Another thing. This 'gift' my doctor mentions, and professors have mentionned as well over the years, has lead me into trouble on numerous occasions when I experience something I'd call 'falling into texts', which relates back to my 'sound' problem. I'm a political science major, and my specialty (and the subject of my masters thesis) is literature and the political imagination. So I read a lot of very beautifully written text. I've always read a lot as I said before, but I'm particularly drawn to texts with rythm, sound. Poetry for example is definitely my thing. Poems are like concertos to me. Music, plain and simple. I 'hear' the music of words, and sometimes I get too caught into that sound, and ideas start spinning as my imagination runs wild (the ideas spinning all the time is the main factor as to why I've been diagnosed as bipolar). During periods of intense stress, such as the situation right now, I can't read because I know I will read too much into the text and loose a certain rationality to my way of thinking. One text I had to analyse, a very long 19th century poem that addressed questions about what is god, was so beautiful, and had me so drawn to the music of it, that things spinned out of control to the point where the concept of god in the poem became the building block for a whole bunch of theories. That's an example of getting into trouble... I read the verses over and over, make the sound come out again. I'm obsessive that way. I can't help it, but at least I have a certain control over this now, where I know that I shouldn't be reading something if I'm not feeling too well. I wonder if anyone else has trouble with this.
Other detail. I like order and my mind feels much less chaotic when everything is in order. Thinking about creating order takes up another big chuck of my time. Order with food is my big thing. After doing the grocery I usually feel 'stable' for quite a few days because the fridge is full with the same products, stacked in rows. Sameness is important. I'll eat the exact same things for a week, revel in that, feel at peace. Everything else will fit in that pattern of repetition and I'll be highly functional. But as the fridge empties I will generally start feeling screwed up again, the house becomes a mess, I can't put things back in their place after using them, all other repetitive aspects of my life also become corrupted, and I become anxious again. So funny enough, my moods seem to be very much influenced by whether or not there are neat rows of products in my fridge. Order starts there.
Anyway, I've said quite a bit. I'm sure more than enough to see whether or not my experience is similar to yours. I'd like to suggest this possibility to my doctor on my next visit, but I'd first like a little bit more insight. I don't want to go in there telling him I passed an internet test for asperger with flying colours thus I have asperger's. I need more convincing evidence, for myself mostly, not for him. I think your experience would be more useful in trying to understand mine, than any google search on the subject or questionaire results.
Thanks for reading my excessive rambling

nancy