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first meeting with public school team regarding my son's dia

Postby acooke21 » Sun Apr 27, 2014 3:03 pm

Hello my son recently got diagnosed with AS and ADHD and I have a meeting coming up with his school team the principal, teacher, school counselor etc. to discuss some sort of intervention for him. Is there anything I should suggest or bring up to them? Thank you!
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Re: Support for parents with AS children

Postby acooke21 » Wed May 14, 2014 8:26 pm

Just wondering if anyone gives their child with AS a probiotic? If so do you notice any changes in behavior?
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Re: Support for parents with AS children

Postby FeythFaerie » Tue Nov 18, 2014 2:39 am

pokkelwietsie wrote:. The thing that worries me is that she has to see an Educational Psycologist soon, someone she doesn't know, in a place she has never been before, and she just might shut down! And even "fool" the Psycologist! I know, I played with a Psycologist so he could not diagnose me correctly when I was a little girl. I knew exactly what the Psycologist wanted, and I was onto him! I was not going to reveal my strangeness to a stranger! Does anyone know the feeling? You put on masks the whole time, fooling just about everyone!


My mother tried bringing me to so many different counsellors and therapists over the years when I was entering/in puberty. I never wanted to open up to a stranger myself. The whole idea was asinine. I don't know this person from a hole in the ground, yet I'm supposed to tell them each and every thing about me? The worst/best was when I was 13 she brought me to one that tried to hypnotize me. Seriously. It wasn't going to work because I had decided it wasn't going to work. But I could also see she was not going to give up until satisfied that it had worked. So I pretended that it worked and basically told her what she wanted to hear just to get it done and over with.

Anyways, I just popped into this thread to see if anybody mentioned, or could mention, early signs from infancy. I gotta keep an eye on my daughter as there's a chance she may have AS/HFA but most doctors say it's just something that we won't know until she's older, babies develop at their own rate. Her biological father and his family refuse to believe she is of his seed (I didn't cheat on him nor lie about the paternity; he's just an irresponsible vindictive jerk thinking he's getting some messed up form of "revenge" for me ending our relationship when I realized just how immature he really is and thinking "I'm going to have a baby to raise; I don't need to be raising him too.") so I can't exactly ask her paternal grandmother was Donor was like when he was this young, if there's any warning signs or am I just reading too much into behaviours of a baby. All I know is, my son was nothing like this.
Unknown: And here I thought 'angioplasty' was plastic surgery to look like Angelina Jolie...
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Re: Support for parents with AS children

Postby The Narcissist » Tue Dec 30, 2014 5:21 am

Father of 11 yr old son with AS and ADHD.
Daughter is 9 with unofficial NPD (need to be 18+ to be official)

Son is a good kid but he can get worked up by certain things. Very sensitive to smell and has trouble entering in to many shops and restaurants because of the order he smells when from inside. Oddly enough he has bowel moments into his under-wear and that smell which is over powering to everyone else he will not even notice or care. This seems to be common with AS kids. It has been difficult to get him to take this type of mistakes seriously enough to prevent them even at age 11.

He is also sensitive to touch had has trouble with certain type of close or even socks. We have to buy special socks and have pockets for each of his toes.

At school he is given quite a bit of liberty, he goes to the normal class but he is allowed to leave it whenever he feels he must and spend time in the library or the special ed classroom.

He gets rapped up in his own world when he reads and spends much of the day reading which is good but we also want him to spend time doing other important things. We want him to grow up being happy and successful.
[Bleeding-heart Overt Narcissist] Official Diagnosis: NPD, Genius, DDNOS(Sadist, Saint, The Analyst, ...?), Bipolar-1, Anxiety, ADHD, sexDaily (Dyslexia), Asperger's Syndrome, and good-looking.
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Re: Support for parents with AS children

Postby Red Tornado » Thu Oct 15, 2015 3:55 am

Hello, a good friend's seven year old son likely has AS, but has yet to be diagnosed officially. Quick question, when he repeats the same question, reminds her again and again about the same event, obsesses over a certain color, certain object or certain natural phenomenon to the point where she is ready to pull her hair out, what is the best way to deal with that? Now that she is almost certain he has AS she wants to know how to best respond to her son and hopefully get him to think of other things if that's possible. She is in her beginning phases of just researching As and finding someone to bring her son to for diagnoses and treatment, so until then a little help would be a blessing.
Any advice?
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Re: Support for parents with AS children

Postby seabreezeblue » Sun Oct 18, 2015 11:11 am

I think it might be worthwhile for your friend to come and join us here or another aspie community so that she can gain some insight into the way an aspie mind works - and i think the best way of doing this is probably for her to spend some time talking to people with aspergers themselves.

When her son repeats questions.. what he's likely trying to do is to ensure that there are no unexpected changes happening that he needs to adjust to.
The world is confusing to an aspie, things change without warning on a daily and even multiple times a day basis.. we enjoy knowing what we're doing and when we're doing it so that our minds are settled.
So the constant questions are her sons way of holding on to something solid in the middle of a hurricane.
Can you imagine being caught up in a world that you don't understand too well and it suddenly starts spinning..? you'd look for a solid anchor to hold on to as well :wink:

Oh.. the obsessions - indulge them.. they're seriously fascinating to the aspie and fairly healthy as long as he doesn't exclude the entire world through them..
ensure he gets a bit of social interaction and maybe see about linking him up with another AS child with the same obsession - that could be brilliant (:
Shine me a light up
and i'll run round the moon..
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Re: first meeting with public school team regarding my son's dia

Postby caretothepeople » Mon Oct 19, 2015 5:30 pm

acooke21 wrote:Hello my son recently got diagnosed with AS and ADHD and I have a meeting coming up with his school team the principal, teacher, school counselor etc. to discuss some sort of intervention for him. Is there anything I should suggest or bring up to them? Thank you!


Passing along some resources on how to get the most out of a meeting to set up an Individualized Education Plan (IEP):

http://www.myaspergerschild.com/2010/09 ... p-iep.html

http://www.naset.org/fileadmin/user_upl ... or_ASD.pdf

http://www.chadd.org/Understanding-ADHD ... eting.aspx

http://adhdmomma.com/2011/12/tips-for-g ... ponse.html

Hope these are helpful and wishing you the best of luck in your meeting!!

-Melody
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Re: Support for parents with AS children

Postby Momoshark » Sun Jan 10, 2016 11:01 am

Tempest88 wrote:An update to my post, it turns out my daughter had been and is hearing voices and believes her cat talks to her. Hence the extra strange and withdrawn behavior. She finally told me about 2 weeks ago, when I noticed she was talking a lot to what appeared to be nothing and I asked what she was talking to.

Can this be normal with kids with AS? Could it be obsessive thoughts and not actual voices? She said the voices sound different than her own, one being what sounds like a mans voice she said.


I have AS and psychotic disorder NOS, and my mind's response to stress or overwhelming situations is psychosis - often starts with derealisation (my first time experiencing this, I was 13 and experienced the world through a foggy dream haze after extensive socialisation) and depersonalisation (often have the feeling my limbs aren't supposed the be where they should be, like having my arm on the back of my head, or bent in a strange way), which are the "red flags" of an upcoming psychotic break.

I'm not sure if it's common per se, but it does happen. It's a good thing to let your daughter know that when things get rough and she starts having delusions (trust me, they're scarier than hallucinations) she has someone to come to. I had to spend the ten years of my teenage years dealing with my psychosis alone because I didn't know what was happening to me, and the people I did tell tried to convince me I was setting ghosts and was paranormally gifted.
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Re: Support for parents with AS children

Postby PilarP » Mon Feb 01, 2016 5:28 pm

moomin wrote:
mothsdance wrote:I am new to this forum and to make a long story short my 12 yr old son has adhd and Aspergers. A few months ago he started having violent outburts and I had to take him to the emergency services department at his mental health provider. The powers that be at the center decided that he needed in home therapy to help manage some of his issues. The therapist comes 2-3 times a week and I have to say that it is going no where. My son barely listens to what he has to say. Half the time I look at this person and wonder what the heck is he doing. My son doesn't undestand half of what the therapist says. He wants my son to use nonsense words instead of cursing. Take deep breaths and meditate, and to stop mid meltdown and ask himself "how can I do this differently". Really???
Is he serious? my son lives in the moment. not yesterday or tomorrow, not even 5 minutes from now. Half the time after my son's meltdown is over he doesnt even recall what started it. After having dealt with these issues since my son was 3 I know what the precursers are, what situations to avoid, etc... His therapist is not considering his autism at all. Has anyone else run into this type of situation? please advise. thanks



Hi there. I am a parent of an aspie child with ADHD as well. He is 19 now so he's not technically a child, but his emotional development is still probably at the 16 year old level so he's still a kid to me. I can so relate to what you're going through and remember my frustration. The thing is there is light at the end of the tunnel. You have to keep this in mind always, but there are some rough years ahead as he goes through puberty. I agree with everyone as to the counselor's way of handling this is not going to help anything. I would suggest asking for a different counselor. This person clearly has no clue what Aspies deal with. If you are in Texas I can provide links to several state organizations that will help and guide you so he can get through junior high and high school and ready for college and their services are all free. My son was diagnosed at 14 so we went through years where he was punished in school and just labelled a "trouble maker". Jr. High was very difficult for him because of the other children and the way they would react to him and we didn't have a clear understanding of what was going on inside his head t cause the outbursts.
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Re: Support for parents with AS children

Postby VanessaSantana » Tue Sep 27, 2016 11:18 am

Hi everyone
Besides new at this forum, I am also POrtuguese, so please forgive me in case I misspell some words.

Ever since my youngest son was little, say 9months old, I have suspected that something was not quite right about him, though he was perfectly normal for his age in all global evaluations, I just "felt" something was not puzzling. As I have a background on Psychology, and am a Criminology Researcher, perhaps it was easy for me to detect some signals that in relation to social and empathic features, something was lacking, however, I was afraid of being overprotective or something, so when whenever professionals told me everything was ok with him, and that he was just rebel and in need of a firm and assertive education, I believed...never the less, I kept thinking to my self, in silence: "No, it is not just that". And as the years passed, I started thinking of some autism spectrum, though as it is not my specialty field, I knew little about it.

But let me just tell you the signals I was gathering all through the years:
1 - when he was 9months, I could not specify what it was, but I thought he was a little under developed in some sense i couldnt explain, took him to a psychologist but she said everything was fine.
2 - All developmental marcs appeared later than the average, though still in time, however something funny was: he first sat straight only at 9months old, but once he did, he could perfectly balance his body, not falling; he started walking on the edge of later, but when he did, he walked almost without help; he started to talk a bit later (also, still in the average line) but once he did he could articulate perfect sentences.
3 - He always slept very well, all through the night;
4 - I realized lots of times, that there was an overlap between a social action and his reaction, and that sometimes when he laughed it was not somewhat spontaneous, more like he was imitating others reactions in order to fit. I saw lots of times, that when he did someting for anyone, he immediately looked at the persons face to try to understand if that person liked it or not. Just as if he could not antecipate his action as good or not.
5 - between 10 and 24months he had this string need to put things in the exact place they were in the first place, whenever someone moved a glass, or his toothbrush or toy from the common place,, to another, he had to go there and put it in the exact first place, and saying: It is not there! That is wrong! It's here!.
6 - when he started cuddling others, at the age of 2years old, manifesting his joy and tenderness, he always did it in an unnapropriate manner, like jumping and hitting the person with his hands, but I could see he did not intend to hurt, he was just trying to cuddle.
7-his cognitive thinking has always been great! He has extraordinary eidetic and episodic memory, even remembering things I forgot, and he can tell if that thing happened when he was 2, 3 or 4years old. He is now 5.
8 - as the need for organizing things disappeared he started getting more aggressive towards others when anyone refuses to do what he wants, or when people give him an order that he just dont wanna follow at that moment. He crosses his harms, makes a grunge face, very irritated, he is very physically strong, he lies on the ground, whatever just not to do what we want him to do. He screems higher and higher if we insist.
9- however, 5 minutes later it is just like nothing happened...and the next time, even after promising he would not repeat, he just does it again.
10 - it is not possible to "buy him out". When he does not want to do something, even if i promise him the entire world in exchange, he just des not do it!
11- there are particular clothes material that he just cant wear, he cries and says it itches him, even if I try to dress him those clothes over underwear or something. He cries honestly.
12- he is very caring, very sweet, he loves kissing me and his friends, he is always telling me i am beautiful, and lovely, and that he loves me, and that I am a princess. He is in constant need and seek for affection, however he can pass in seconds from that affective mood to an ooposite behavior.
13- he seeks for friends and he gives them attention and wants to play with them.
14- he has a strong líder profile, and his school friends like him a lot.
15- he likes routines, I realized that he likes to have everything scheduled and likes to ask, what day is tomorrow, and he will do tomorrow, and if we get out of the routine that bothers him. He has some preference for doing things in the same order (thought there are times when hat is more visibe than others)
16- he does not cope well will norms and is very desobediant
17 - he has very good physical abilities, he is good in playing football and very good in martial arts, but he sucks in paintings and drwaings, and he gets very upset with that.
18- he keeps telling me he is a bad boy, that he does bad things, and asks why he is like that.

Could you please help me if this could be symptoms associated with some asperger or autism spectrum?

Thank you so much!!
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