Our partner

It is currently Mon Jun 14, 2021 7:52 am

News News of Huntington's Disease

Site map of Huntington's Disease » Forum : Huntington's Disease

Huntington's Disease message board, open discussion, and online support group.

Boyfriend diagnosed with HD, CAG 43- Advice needed :(

Hi, just thought I’d reach out to you all on here as I am struggling to cope and can’t really talk to anyone who understands the situation- would really love some advice from you as my heart is broken right now for my boyfriend who has just tested positive for HD with a CAG count of 43….

Im 27 and been with my boyfriend (30) for just over 2 years now, he has only just ...
Read more : Boyfriend diagnosed with HD, CAG 43- Advice needed :( | Views : 2544 | Replies : 2

Help! I am not sure what is happening to me

So this past 2 weeks, i wake up and cannot remember any of my friends. I can remember who i am and who my family r. It seems to me that i cannot remember anyone i have met these past 3 years at the most. I am kind of freaking out because i do not want my mom worrying about me and so I need help on what i need to do. I have never ...
Read more : Help! I am not sure what is happening to me | Views : 3272 | Replies : 0

Justgiving.please sponsor matt

Inspirational man,here are a few words from him....

Hi, last year I managed to raise around £600 by doing the Plymouth Half Marathon on crutches, I have a degenerative bone disease and my leg mobility is decreaing, so this year I have decided to expand on it and do a series of races from 5K to half marathon in my wheelchair, not just for HDA in memory of my Father in law and other family ...
Read more : Justgiving.please sponsor matt | Views : 2890 | Replies : 0

HD Science Blog

Nacho is a neuroscientist working to find a cure for Huntington's Disease.He posts fairly regular.
*mod edit- link removed (broken link)*
Read more : HD Science Blog | Views : 2787 | Replies : 0

Meet my daughter with JHD.

*mod edit- anonymity concerns*
Read more : Meet my daughter with JHD. | Views : 3080 | Replies : 0

JHD Memorial Candle tributes.

Let's not forget this awful disease affects kids to.My daughter has JHD.

*mod edit- link removed due to anonymity concerns*
Read more : JHD Memorial Candle tributes. | Views : 2747 | Replies : 0

New Youth Organization coming soon!!

Are you a young person affected by Huntingtons Disease?Here is a new organization that is to provide support and information to people just like you.Coming very soon!!!

Read more : New Youth Organization coming soon!! | Views : 2732 | Replies : 0


There is a channel on youtube where a man with Huntingtons Disease and his son are touring India by motorbike.Very inspirational stuff.MUST SEE!!If you are a member of youtube please SUBSCRIBE!! :)

Read more : MUST SEE YOU TUBE CHANNEL!! | Views : 3244 | Replies : 1

The odds

My nan had huntingtons disease.
My auntie has it and she has a child who is aged 10, My aunties huntingtons is moving pretty rapidly, she'll need a wheelchair in the next 2-3years.

My dad may have huntingtons also, What's the odds that I'll have it? :?
Read more : The odds | Views : 3316 | Replies : 3

My Positive Huntington's Website

In case nobody here knows. Huntington’s has physical and mental symptoms. I am in the mental phase right now. It includes Anxiety, depression, mood swings, and Hallucinations. Being that, I am a former nurse, I had to make this site. Some of you might gain something through the positive approach. This page has my story. There is care giving tips, an HD Blog, skills for a mentally stable life, treatments, how to help brain fog, ...
Read more : My Positive Huntington's Website | Views : 6528 | Replies : 1


Login  •  Register


Total posts 2162160 • Total topics 182172 • Total members 210723