by tazzie123 » Wed Jun 28, 2006 1:51 pm
400mg of Provigil is what I started at now I'm up to 600mg and still sleepy. My latency test was 3, 1 and 0. The doctor had the prescription waiting when I went in for follow-up.
Keep an eye on your iron also. If it gets too low -because we would rather sleep than eat- it drains me even more. Don't neglect going to your regular doctor for colds and regular blood checks. For lunch -if possible get a nap - You'll need a timer or something and take 20 minutes at lunch if you can a get a nap. When you get home FORCE yourself to go in change your clothes and then leave the house again and walk around the block or some kind of exercise. It gives me enough of a boost to get some house work done. The big part of this is to change your clothes I don't know why but it seems to help.
The main thing to remember is that this is not a -your lazy- your depressed - you need to pull yourself out of it - condition.
Being lazy and depressed of symptoms of this disease because falling asleep before I can do anything, depresses me; and falling asleep instead of finishing the wash looks lazy.
Remember your fighting a against something that if it catches while driving CAN KILL YOU. Provigil is for Sleepers like coffee is for regular people it helps us stay awake if we want to. IF WE WANT TO.
If the apnea is not allowing you to get a real 10 hours sleep at night then you need to toughen up and wear the CPAP, look what happened to Reggie White, the NFL player!
I am sorry if this borders on rude but I hate what narcolepsy has done to my life - THE YEARS I MISSED OUT ON. I am 43 and childless, with an ex-husband on the way, I married him out of some stupid belief that he was my last chance at a life. I was wrong.
I need the Provigil to be my safeguard. To give me the chance that I can take back my life. With the Provigil, I can now drive to the beach, I can go to the places I WANT. Do what I want...OK there are limits. I need to recuperate more. If I drive 100 miles to an event I like, then I know that I need to sleep before I leave and I need to sleep when I get there or I'll fall asleep instead of watching the concert I paid 200 dollars for. But it's possible. It's more of a life than I had before. I'm not scared of DOING now.
Since I am still falling asleep more than my doctor likes he said I may have to go onto Amphetamines. I am trying to adapt my life so I don't have to, but. . .