Our partner

Finally knowing the truth... unable to cope with the truth!!

Narcolepsy message board, open discussion, and online support group.

Finally knowing the truth... unable to cope with the truth!!

Postby sweetorientaldream » Thu Jun 16, 2011 6:49 pm

I'm sure you've all hear so many stories and posts on narcolepsy... This one might seem no different however please try to understand, I just got diagnosed yesterday. Please if you have a few minutes read this, all I need is some emotional support and to share my story as well. Just to give a little bit of a background I am a healthy, physically fit, young 23-year old adult. I have never had ANY health issues in the past, the only thing I've ever been "diagnosed" with was a cold or a flu. I feel so frustrated about now being "diagnosed" with something like this. I was 15 or 16 as I remember and constantly fell asleep in classes or in the afternoon with no ability to fight it off. At 16 I also had my first sleep paralysis, now It's a very frequent episode in almost all my sleep life. Long story short, already labeled as a "lazy kid" or "sleepyhead" by family and friends I've finally decided to mention that to my primary. He seemed very concerned as he knows how healthy I am. He did a complete blood work, exluded any substance, chemical, anemia etc. in my body. He referred me to a neurologist who also specialises in sleep disorders. After tests etc. my diagnoses came yesterday... narcoleptic 100% according to him. Does this suprise me? I've learned about narcolepsy more than anyone in 10 years just overnight. Yes, yes sounds very accurate. However I am so upset about this! I learned that the back of my brain that regulates sleep, isn't stimulated enough. I am so mad at my own brain right now. Why when I'm so healthy, no other disorders, health issues etc. why did my brain did this to me? Now I have to choose the right medicine that will work for me. I started the medicine yesterday and already I feel "normal" which I haven't felt like that in a long time. I should be happy? So why am I frustrated to find out the truth and the fact it's not curable and that medicine is the only thing that will keep me "normal" for now on?
sweetorientaldream
Consumer 0
Consumer 0
 
Posts: 1
Joined: Thu Jun 16, 2011 6:12 pm
Local time: Sat Mar 06, 2021 12:07 am
Blog: View Blog (0)


ADVERTISEMENT

Re: Finally knowing the truth... unable to cope with the truth!!

Postby jasmin » Sun Jun 19, 2011 4:53 pm

Sweetorientaldream, it's normal to be shocked by this and it's ok that it bothers you right now. I'm sorry you were diagnosed with this illness. Try to look on the bright side, though. You will only feel better from now on, and your life will only get better too. You know what has been going on and it sounds like those meds will help you. It's going to be ok. The stress will probably pass in a while.
forum-rules.php
I am sorry I am not on the forum as much as I used to be, if I do not reply to you quickly, please contact another moderator/supermod/admin as well.
jasmin
Consumer 6
Consumer 6
 
Posts: 15541
Joined: Thu Feb 15, 2007 1:59 pm
Local time: Sat Mar 06, 2021 5:07 am
Blog: View Blog (0)


Return to Narcolepsy

Who is online

Users browsing this forum: No registered users and 1 guest