by sweetorientaldream » Thu Jun 16, 2011 6:49 pm
I'm sure you've all hear so many stories and posts on narcolepsy... This one might seem no different however please try to understand, I just got diagnosed yesterday. Please if you have a few minutes read this, all I need is some emotional support and to share my story as well. Just to give a little bit of a background I am a healthy, physically fit, young 23-year old adult. I have never had ANY health issues in the past, the only thing I've ever been "diagnosed" with was a cold or a flu. I feel so frustrated about now being "diagnosed" with something like this. I was 15 or 16 as I remember and constantly fell asleep in classes or in the afternoon with no ability to fight it off. At 16 I also had my first sleep paralysis, now It's a very frequent episode in almost all my sleep life. Long story short, already labeled as a "lazy kid" or "sleepyhead" by family and friends I've finally decided to mention that to my primary. He seemed very concerned as he knows how healthy I am. He did a complete blood work, exluded any substance, chemical, anemia etc. in my body. He referred me to a neurologist who also specialises in sleep disorders. After tests etc. my diagnoses came yesterday... narcoleptic 100% according to him. Does this suprise me? I've learned about narcolepsy more than anyone in 10 years just overnight. Yes, yes sounds very accurate. However I am so upset about this! I learned that the back of my brain that regulates sleep, isn't stimulated enough. I am so mad at my own brain right now. Why when I'm so healthy, no other disorders, health issues etc. why did my brain did this to me? Now I have to choose the right medicine that will work for me. I started the medicine yesterday and already I feel "normal" which I haven't felt like that in a long time. I should be happy? So why am I frustrated to find out the truth and the fact it's not curable and that medicine is the only thing that will keep me "normal" for now on?