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Hello, new narcoleptic here...

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Hello, new narcoleptic here...

Postby Thanks2Banks » Thu Feb 27, 2014 6:17 pm

Been battling Narcolepsy since second grade (though I hear it doesn't affect many children?) and was only diagnosed a year ago with it. It was a long battle to be tested for it. Now the problem is my insurance won't cover the costs of any narcolepsy medication and every time I retry I have to make a new appointment with neurology but they schedule out 5months...

So, how hard was it for you to finally convince doctors there is an issue that needs to be addressed?

Were you misdiagnosed at first?

What medication are you on and how well does it work for you?

If not on medication how do you cope? Because I am certainly struggling :lol:
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