Our partner

Anyone have DID/OSDD with conversion disorder?

Dissociative Identity Disorder message board, open discussion, and online support group.

Moderator: Johnny-Jack

Anyone have DID/OSDD with conversion disorder?

Postby KitMcDaydream » Mon Oct 19, 2020 12:22 pm

just wondering how common it is for people with DID/OSDD's to also have conversion disorders (now known as Functional Neurological Disorder).

Your specialist may have also referred to it as 'psychogenic' symptoms if you were diagnosed with it many years back?

A conversion disorder/FND would be where psychological/mental stress causes physical symptoms usually that specialists can find no physical cause for. It can also be where a symptom originally genuinely appeared (due to a physical cause) but the cause for the symptom is no longer present


There was a fascinating case of a german woman who was blind due to an accident, who 4yrs into counselling treatment for DID regained the ability to see words but only as ONE of the alters. In her case most of her alters were blind and 8 of them eventually regained sight, 2 remained blind (she had 10 alters).

Also different in her case (because of the DID I suspect) her vision was able to switch on and off 'like a light switch' depending which alter was up front.

In the case of the German lady it was originally thought to be 'cortical blindness' and the fact it wasn't didn't occur to anyone until that first alter regained the ability to 'see words' during a therapy session many years later (she had a guide dog and had been living as a blind person for many years).

https://www.medicaldaily.com/blind-woma ... -10-363300

They stated

"Scientists are still not completely sure how individuals with this condition are able to switch their conditions on and off, but conversion disorders are usually treated with a combination of counseling and physical therapy. For B.T., therapy allowed her to regain sight in all but two of her 10 personalities.

"These presumably serve as a possibility for retreat," Strasburger told Braindecoder. "In situations that are particularly emotionally intense, the patient occasionally feels the wish to become blind, and thus not 'need to see"


In our case I believe it was the autistic's mind intense sound phobia that had an intense wish to not be able to hear or to be able to switch off/better control incoming volume although in our case it seems because we were unable to imagine that result when younger, it didn't occur until after the body had actually experienced 'hearing loss, (which was entirely coincidental and down to another condition the body was born with) that the benefits of this was understood.

As an adult, once one alter understood that our current remaining 'hearing difficulties' were more due to auditory processing disorder all other alters have regained the ability to hear better, although we all still struggle with deciphering speech and seperating it from background noise. Everyone experiences Tinnitus and sensitivity to some sounds and pitches.

'Deaf Thea' no longer identifies as culturally deaf and now blends with Kit to produce a 'new host' for some social situations/appointments. (although we don't currently have many as in lockdown again, but they are planning to be the future 'main host' if life ever returns back to normal!)

Regarding the physical mobility of the body, everyone except 'Maddie' responds to the body as it is now (ie recognises it can do more than it could) Maddie still appears to be 'stuck in the past' and identifies with the level of physical disability we originally experienced after the neurological attack that happened in the bodies 30's.

There must be others out there with something similar? or is it for us the combination of the conditions mixed together (autism/CD/dissociative disorder of some kind) that has created the unusual difference between how the alters are?

Is the fact we were told to keep 'our world' a secret, meaning we've been undiagnosed and had no therapy specifically addressing either the CD or dissociation in the bodies entire life? (now in its 50's) eg alters have been allowed to develop at will without any outside interference/influence from counselors etc?
User avatar
KitMcDaydream
Consumer 6
Consumer 6
 
Posts: 534
Joined: Mon Jun 25, 2018 1:24 pm
Local time: Mon Nov 23, 2020 8:03 pm
Blog: View Blog (0)


ADVERTISEMENT

Re: Anyone have DID/OSDD with conversion disorder?

Postby birdsong87 » Mon Oct 19, 2020 9:01 pm

I am sorry, I didn't read everything you wrote
I just wanted to say that conversion disorder is considered an outdated concept by leading voices of the ISSTD. they propose that the correct discription would be 'somatoform (structural) dissociation' with positive and negative symptoms. it makes it clear that this specific kind of somatoform symptom is a result of trauma and thereore found in traumatized people. the reasoning is excellent.
Nijenhuis wrote a whole book about it, called somatoform dissociation, in case you want to read about that persepective.
I have never heard it called functional neurological disorder before and that word actually seems to describe something other than somatoform dissociation.
Dx: DID cPTSD
L (host 1); Asti (host 2); Annett (teen protector); Maya (child); Age (observer); Thamara (child); Danielle (aut. teen); Mike (caregiver) and others
Our blog on resources https://www.dis-sos.com
birdsong87
Consumer 6
Consumer 6
 
Posts: 3857
Joined: Mon Mar 23, 2015 10:20 am
Local time: Mon Nov 23, 2020 9:03 pm
Blog: View Blog (0)

Re: Anyone have DID/OSDD with conversion disorder?

Postby ArbreMonde » Tue Oct 20, 2020 7:00 am

oOo The depiction given by Birdsong sounds very accurate to what we experience here.

oOo Not all of us has the same level or types of of sensory sensitivities, sensory distress, and various dys- things. I never gave it a second thought because it is logical to me that different ways of connecting the brain ( = different alters) would have different abilities and peculiarities regarding everything linked to the brain's function, and different types of somatisation of the stress.

oOo I guess that what felt like an evidence to me, is not as much an evidence than I thought.

--

van H.
Multiple system Dx autistic, depression, c-PTSD...

he/him | she/her | they/them

System members: oOo van Hohenheim | oTo Trisha | & Urielle | - X | // Ulysses | ♥ Lust | Sub-system: {Pride|Wrath} | ?? Zami ??

Journey thread
User avatar
ArbreMonde
Consumer 6
Consumer 6
 
Posts: 544
Joined: Fri Sep 06, 2019 2:28 pm
Local time: Mon Nov 23, 2020 9:03 pm
Blog: View Blog (0)

Re: Anyone have DID/OSDD with conversion disorder?

Postby KitMcDaydream » Tue Oct 20, 2020 10:49 am

NORD (National Organisation for Rare Disorders says

"Historically, FND has traditionally been viewed as an entirely psychological disorder in which repressed psychological stress or trauma gets ‘converted’ into a physical symptom. This is where the term ‘conversion disorder’ comes from. Psychological disorders and stressful life events, both recent and in childhood, may be risk factors for developing the condition in some patients, but they rarely provide a full explanation for the cause of the condition and are absent in many patients. Patients do not have to be depressed, anxious or the survivor of adverse childhood experience to develop FND"


https://rarediseases.org/rare-diseases/fnd/



In specific reference to the German lady 'BT' also having DID:

"Psychogenic blindness is a type of conversion disorder — a physical condition that cannot be explained by physical damage. These conditions are usually caused by an extremely stressful or emotional crisis that will manifest as a physical problem. Other types of conversion disorders include inexplicable paralysis or speech problems.

Scientists are still not completely sure how individuals with this condition are able to switch their conditions on and off, but conversion disorders are usually treated with a combination of counseling and physical therapy. For B.T., therapy allowed her to regain sight in all but two of her 10 personalities.

"These presumably serve as a possibility for retreat," Strasburger told Braindecoder. "In situations that are particularly emotionally intense, the patient occasionally feels the wish to become blind, and thus not 'need to see.'"

Source: Strasburger H, Waldvogel B. Sight and blindness in the same person: Gating in the visual system. Psych Journal. 2015.

Admittedly the case was in 2015 and its possible more has been discovered since then. Though it seems to be extremely rare and I can't find another documented case online of someone specifically with DID also and the way it can affect some alters but not others.

Though this does kind of make sense given that people on here have reported things such as child alters being unable to read but adult alters can. as logic would dictate that if the body was adult and had learnt to read that everyone within the body should be able to read. (obviously this doesn't take into account the theory that different alters can carry and/or have access to different memories)

Obviously it's not that simple, so in that context it can be entirely possible that one alter can do something that another physically cannot. Although in BT's case she was blind for 15 years before she had the therapy for DID and even then it had taken 4 years of it to reach the point where one alter 'read a word'

My audiograms indicate deafness where 'Thea' had taken them. I've also had an MRI and of course you can't wear hearing aids in the room and there's some kind of intercom system within the machine so they can talk to you but at no point did anyone say my brain showed it heard the noises (from the machine) or that it appeared to be recognising speech (as would show on the brain of an 'hearing person' in the machine). I don't know if I'd get different results now (the MRI was 17yrs ago)


I've thought about having counselling after the pandemic (when its safe to be out) without mentioning other alters initially, to see if they would come forward within a session eventually and a psychologist would come to the same conclusion. I'm not sure though whether they would co-operate and 'come out on demand' in front of someone else that they knew was there to assess or judge us. Many of the system still prefers to remain 'secret' in relation to people we interact with in the outside world.
User avatar
KitMcDaydream
Consumer 6
Consumer 6
 
Posts: 534
Joined: Mon Jun 25, 2018 1:24 pm
Local time: Mon Nov 23, 2020 8:03 pm
Blog: View Blog (0)


Return to Dissociative Identity Disorder Forum




  • Related articles
    Replies
    Views
    Last post

Who is online

Users browsing this forum: Allcoulors and 59 guests