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Getting officially diagnosed?

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Getting officially diagnosed?

Postby ZodiacDragon » Fri May 17, 2019 10:46 am

Posting this on behalf of all of us.

So we know we have DID, but a few of us (mainly Alex and Anime) still would like to be officially diagnosed but without it going on our legal record. Our partner whom also has DID was officially diagnosed by going to a therapist, however he went under a fake ID (not going to go into details) so it wouldn't be put on his record due to the stigma and difficulties that come with that kind of diagnosis. We would also like an official diagnosis through a therapist, but we have the same worry of stigma/legal record.

TL;DR We do not want it documented but we do want a professional diagnosis. Any recommendations on how to go about this?
-Neko
Depression, Anxiety, Dyslexia, Gender Dysphoria, DID

Alex - Host, Human, 21, FtM, Pan
Sarabi - Opossum, 21, F, Pan
Akane - Anthro wolfdog, 21, M, Pan
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Re: Getting officially diagnosed?

Postby VioletFlux » Fri May 17, 2019 10:57 am

So I guess it makes a big difference where you are, like what your country's laws and stuff are?

Cos we got a Dx here, but there's no 'official record', nobody else would know about it if we didn't tell them? That was through private therapy, seeing someone on our own $ and of our own choice.

Could that be an option for you? Like see a private T and pay out of pocket so there's no like insurance record or paper trail or whatever?

Also curious, none of my business, but what's the value of getting the 'official diagnosis' but doing it unofficially so it's not, like, on some official record somewhere?

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Re: Getting officially diagnosed?

Postby ZodiacDragon » Fri May 17, 2019 11:38 am

VioletFlux wrote:So I guess it makes a big difference where you are, like what your country's laws and stuff are?

Cos we got a Dx here, but there's no 'official record', nobody else would know about it if we didn't tell them? That was through private therapy, seeing someone on our own $ and of our own choice.

Could that be an option for you? Like see a private T and pay out of pocket so there's no like insurance record or paper trail or whatever?

Also curious, none of my business, but what's the value of getting the 'official diagnosis' but doing it unofficially so it's not, like, on some official record somewhere?

Viola

We live in the USA. Specifically in North Carolina.

We have a private therapist whom we already pay out of pocket with cash (no insurance), she's the one who diagnosed us with our other things listed in our signature. While we do completely trust her Alex seems to worry that she may attribute our claims of DID to our other diagnoses and possibly dismiss it. Saggita on the other hand is worried if she does diagnose us with DID then she might neglect our other issues and only focus on our DID or even put it on paper despite our request not to.

As for why we want an official diagnosis without any paper trail.
We want an official diagnosis for essentially ease of mind. Alex seems to still have a small amount of worries/denials about it, so having a professional confirm it would possibly help him. Where as Anime is a very factual and scientific person, so they want an official diagnosis simply to have a professional's viewpoint and confirmation (Anime didn't want gender dysphoria on our signature here until we had it officially diagnosed). We don't want a paper trail or name trail because we're worried about stigma/etc. (especially since we're in a very religious part of the country).
-Neko
Depression, Anxiety, Dyslexia, Gender Dysphoria, DID

Alex - Host, Human, 21, FtM, Pan
Sarabi - Opossum, 21, F, Pan
Akane - Anthro wolfdog, 21, M, Pan
Saggita - Dragon, ??, F, Straight
Anime - Dragon, 2100+, Agender, Demi
Neko - Human-nekomata mix, 945, M, Gay
Flair - Pegasus-dragon mix, 2000+, MtF, Pan
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Re: Getting officially diagnosed?

Postby VioletFlux » Fri May 17, 2019 12:10 pm

Hey Neko,

Yeah that makes sense. Our V1 was really hung up on getting an official Dx for similar reasons. Then when our first T did 'officially' tell us it was DID, she was kinda let down like it wasn't as confirming or whatever as she'd hoped - like sorta because there wasn't anything 'official' about it, no paperowrk or whatever. V2 even teased her about that, like she wanted a wallet card and framed certificate or something, lol.

We're in Ontario, Canada, and no insurance or whatever so there's no like official papertrail and therapy isn't covered by the public healthcare system so there's nothing official with like government records either.

I guess maybe you could find a 2nd T and talk to them privately about DID. Get them to administer the MID or SCID-D maybe? Tell them you suspect DID and want them to confirm it? That'd probably be the most direct way to do it, without involving your existing T or anyone else.

Good luck!

Viola
Outside Team: Arin (22f); Viola (17f); Violet aka V2 (16f);
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Re: Getting officially diagnosed?

Postby Zor » Fri May 17, 2019 1:21 pm

ZodiacDragon wrote:
We want an official diagnosis for essentially ease of mind. Alex seems to still have a small amount of worries/denials about it, so having a professional confirm it would possibly help him. Where as Anime is a very factual and scientific person, so they want an official diagnosis simply to have a professional's viewpoint and confirmation (Anime didn't want gender dysphoria on our signature here until we had it officially diagnosed). We don't want a paper trail or name trail because we're worried about stigma/etc. (especially since we're in a very religious part of the country).
-Neko


The "ease of mind" thing, we get. It was disturbing, yet comforting, getting told we were OSDD (originally diagnosed that) b/c it meant we weren't "crazy" or delusional. The things I had experienced, remember and not able to remember, all the weirdness, and inconsistencies... they all had a reason... I hadn't been lying to myself and basically everyone I know for a decade (actively and overtly), I wasn't that kind of obliviously delusional and dishonest a person...
Later it being formally listed as DID only more or less cemented what we'd been told already and were struggling to accept... There was a sense of "finality" to it, the end of the questions about what is going on and why... This made more questions and sets up a TON of work with the T, of course... but there's a lot of fear in the unknown, and having an answer, even if not an ideal one or the one most people would ever want... it was comforting. I absolutely understand that.

Stigma and religion- sadly, sometimes the people that SHOULD understand the brokenness of others and be compassionate fail to live up to what they're told to in their scripture. I'm very religious (several of us are- to varying degrees). This coming out, was discovered by a couple in our church whom we were close to, some of the alters were VERY close to them (closer than _I_ was even)... and this caused a MASSIVE uproar... they deny (to this day) the TWO doctors' and their diagnosis. They made heinous accusations against me, even KNOWING the diagnosis... and ultimately, I lost friends and my church over it. I understand your fear.
I have a feeling that if this were a social setting entirely unrelated to and remove from religious elements, the reactions would have been identical. Sadly, people who preach and espouse forgiveness and compassion are often just like the rest of the world and not at all different as they say they are and strive to be. It's a great and terrible tragedy. :(

That fear of the stigma is something we share, too. It is hard to not feel ashamed of yourself, and scared of what others would say... when we all know what MOST people think... and what Hollywood puts out to further poison the perception by the general public.
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Re: Getting officially diagnosed?

Postby ZodiacDragon » Fri May 17, 2019 1:35 pm

VioletFlux wrote:I guess maybe you could find a 2nd T and talk to them privately about DID. Get them to administer the MID or SCID-D maybe? Tell them you suspect DID and want them to confirm it? That'd probably be the most direct way to do it, without involving your existing T or anyone else.

Good luck!

Viola

Hello Viola.

I thought of that. We will talk amongst ourselves about the idea, and also talk to our partner about it. Also, I am very poor with acronyms and the others aren't really around or are preoccupied at the moment to assist me, what is MID and SCID-D?
-Neko

Zor wrote:Kind words

Thank you for your input. Our partner had some people react very badly to his DID (why he got diagnosed under a fake ID), and he is very worried about a similar reaction to us if we were to get diagnosed. We haven't even told one of the people in our relationship (poly relationship, total of 4 bodies, only myself and my partner have DID) because she is still getting used to our partner having DID so we want her to get used to being around mainly Alex first then once she's fully comfortable with him (and we will sometimes be out around her without telling) we'll tell her about our DID. The other partner is the one whom initially suspected us to have DID so she knows.
-Neko
Depression, Anxiety, Dyslexia, Gender Dysphoria, DID

Alex - Host, Human, 21, FtM, Pan
Sarabi - Opossum, 21, F, Pan
Akane - Anthro wolfdog, 21, M, Pan
Saggita - Dragon, ??, F, Straight
Anime - Dragon, 2100+, Agender, Demi
Neko - Human-nekomata mix, 945, M, Gay
Flair - Pegasus-dragon mix, 2000+, MtF, Pan
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Re: Getting officially diagnosed?

Postby VioletFlux » Fri May 17, 2019 2:46 pm

Hey Neko,

Sorry bout the alphabet stuff lol.

MID = Multidimensional Inventory of Dissociation. It's a questionnaire sorta thing you fill out, around 200 to 300 questions. You rank them, 0 to 10 I think? Some Ts let you just fill it out at home and hand it in, others wanna do it with you verbally in a session, I guess to see how you react and stuff.

SCID-D is (i think...) structured clinical interview for dsm-5 -dash- dissociative disorders. It's a one-on-one interview with the T, and can take a few hours or spread over a few sessions. It's 'structured' so the T is either following a script or at least following a list of questions or something? We haven't done it so I don't know exactly how it works.

Both MID and SCID-D are 'diagnostic tools'. So like the DES (dissociative experiences scale) is a 'screening tool' and can't be used to give a Dx, but the MID and SCID-D can be used as the basis of a diagnosis.

I don't know how the scidd is 'graded' but the MID comes up with a bunch of numbers for like, derealization/depersonalization, identity, amnesia, etc, so it kinda breaks down each 'aspect' of DID to show how much you're affected by each thing.

Viola
Outside Team: Arin (22f); Viola (17f); Violet aka V2 (16f);
Inside Team: Charlie(6m); Claire(0f); Ewan(4m); Janet(4f); L----(∞f); Melissa(7f); Mike(35m); Nyssa(10f); Rebecca(∞f); Trina(25f); V1(22f); et al.
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Re: Getting officially diagnosed?

Postby ZodiacDragon » Fri May 17, 2019 3:01 pm

VioletFlux wrote:Hey Neko,

Sorry bout the alphabet stuff lol.

Viola

Thank you very much for the explanations Viola!
-Neko
Depression, Anxiety, Dyslexia, Gender Dysphoria, DID

Alex - Host, Human, 21, FtM, Pan
Sarabi - Opossum, 21, F, Pan
Akane - Anthro wolfdog, 21, M, Pan
Saggita - Dragon, ??, F, Straight
Anime - Dragon, 2100+, Agender, Demi
Neko - Human-nekomata mix, 945, M, Gay
Flair - Pegasus-dragon mix, 2000+, MtF, Pan
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Re: Getting officially diagnosed?

Postby Dnester » Fri May 17, 2019 3:47 pm

I totally understand wanting a diagnosis. It will follow you. If you ever went to a psych hospital they could get your records, your records can be subpeonaed through court etc.
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Re: Getting officially diagnosed?

Postby Sarandipity » Fri May 17, 2019 5:34 pm

My "good" therapist who told me I had DID as a label promised she wouldn't write it on my record. She then offered to show me all of my records. I declined. I don't care what's written on them other than they didn't write DID. And I took her word she didn't write anything - she just left a recommendation of art therapy when she retired if I ever asked for therapy again. I had the art therapy but I didn't like the therapist.

Also I had a fantastic psychiatrist at the time who sent me to that therapist. If I had a burn out or whatever you want to call it he let me stay in the hospital a few days to eat and sleep without meds and I left when I felt ok again. So I felt really safe and well cared for psychologically.

Then they changed the psychiatrist. I had a bit of a burn out and this new one wouldn't even call my old doctor. I thought the horror stories I heard about him were exaggeration but they were true. He prescribed me two pages of meds. He tried to have me committed for 6 months but I know the law and he couldn't on a technicality. I started the process to sack him as my doctor and he let me out but I was medicated. I got another doctor to assist in coming off the meds he forced me to take. I will avoid psychiatric services like the plague because of Dr Lobster (not his real name, just what I call him) because I did kind of boil him (started to sack him, told the independent doctors assessing me to commit me for 6 months all about him. He was running around the ward chasing me at one point, that's how much he fell off his high horse - I got legal help and two of my own people to come to ward rounds so I didn't have to talk to him and he started to think twice). He labelled me with bipolar effective disorder - I really don't care about their BS labels because I've been labelled so much and had them changed its so stupid it's ridiculous.

I know what's "wrong" with me and until the physiatric community pull their fingers out their asses regarding this disorder the only place I would consider going is a specialist DID centre. When I feel burn out I go and stay in a hotel to recharge and recentre. My family knows I have to do this occasionally.

So I'd only go to a specialist centre. You could ask for it to be off the record. You could be lucky.
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