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Narcolepsy message board, open discussion, and online support group.

Do I have Mild Narcolepsy??--Please Help

I am a teenager (I don't drink or do drugs) and I have recently been experiencing symptoms that sound kind of like Narcolepsy, but I am not sure if it is just from a lack of sleep (usually get around 5-6 hours of sleep) or something more serious. I think I might have a really mild form/the beginning stages of Narcolepsy but I thought I would ask somebody that is diagnosed to see if they, ...
Read more : Do I have Mild Narcolepsy??--Please Help | Views : 8 | Replies : 1


Natural Remedies for Narcolepsy?

Hello everyone!

I have Narcolepsy and I was inquiring if anyone was using any natural remedies to help with the symptoms. I just read about a site called Vitaganic and they have a special mixture of vitamins suppose to help the symptoms of narc. Has anyone herd or used this? Any other suggestions would be wonderful as well.

Thank you for you time
-Faith
Read more : Natural Remedies for Narcolepsy? | Views : 22 | Replies : 0


Help! Do I have Narcolepsy?!

I am a 35 year old mother of 2 beautiful children. This last year has been particularly stressful for me. I have been to doctor after doctor and the er 4 times with the same symptoms with no diagnosis other than sinusitis. It started with daytime fatigue and then escalated to what I at first called dizziness. I am now realizing is more like that feeling you get when you accidentally nod off while someone ...
Read more : Help! Do I have Narcolepsy?! | Views : 37 | Replies : 2


Could I have narcolepsy?

Could I have narcolepsy even though I'm not passing out randomly?
I have all the other symptoms other than that. I can say that I have fallen before because for some reason I got extremely weak but I have no idea what that's from because I haven't seen a doctor in a long time.

I have had nightmares that have woken me up within minutes of falling asleep.
I hallucinate when I'm half asleep.
I've ...
Read more : Could I have narcolepsy? | Views : 347 | Replies : 1


Help?MEMORY LOSS causing problems

Hello!
My name is Briar Rose, u may refer to me as BRI if u like. I'm Needing some help with relationships. If u think I should post under a different forum let me know...k?

1st Background info:
I am 30 something narcoleptic. I was diagnosed in 2004 and I started a treatment of Modafinil (Provigil) in 2006. The miracle drug did nuthin for me even though I maxed the dose. So they added 20mg ...
Read more : Help?MEMORY LOSS causing problems | Views : 1163 | Replies : 6


I just live with it

I've found that even though I'm tired most of the day, there are plenty of things I can do to combat it. One, I take my vitamins everyday. Two, I always keep myself hydrated, not only because it's healthy, but it's hard to fall asleep if I have a full bladder. Three, I KEEP MOVING. If I sit still, game over. Four, I do not consume any processed sweets, to include soda. I still feel ...
Read more : I just live with it | Views : 1129 | Replies : 7


Is this possible?

I got a friend who claims to be "slightly narcoleptic". I don't know much about Narcolepsy, but I didn't know there were levels of the condition. I basically thought you were or weren't. Well I mean I figured some people would have it worse than others, but my friend tells me that his condition is different than normal Narcolepsy.

First of all, I know he does sleep a lot. He will fall asleep in the ...
Read more : Is this possible? | Views : 805 | Replies : 6


Jessica's Story

Hi Everyone, I'd like to share with you a story that was recently posted on the Prescription Access Litigation (PAL) blog (http://prescriptionaccess.org/blog/?p=241) entitled "Jessica's Story."

Jessica is 26 years old, and struggling to afford her prescription for Provigil (As I'm sure many folks on this forum do!).

There is no generic version of Provigil available so Jessica contacted Cephalon’s patient assistance program, for help. What they suggested will shock ...
Read more : Jessica's Story | Views : 1182 | Replies : 0


Narcolepsy

I haven't been officially diagnosed with narcolepsy, it is the doctors belief I have it. First are the sleep apnea tests, c-pap breathing machine, and a considerable effort by the doctor to think of the chemical interactions with other medications. I hope this will not, the meds, become a problem. I'm worried about controlling my auto or falling asleep at the wheel. This is frightening.
Read more : Narcolepsy | Views : 1702 | Replies : 1


Narcolepsy Novel

Hello All,

I would like to tell you about my new novel, Aberrations, 10 years in the making. It is unique in that the main character has narcolepsy and cataplexy. I truly believe that the book can be used to help support narcolepsy awareness. My depiction of narcolepsy finally brings readers a realistic understanding of what it means to be narcoleptic while skillfully weaving the story into a poignant societal commentary by comparing the uncontrollable ...
Read more : Narcolepsy Novel | Views : 346 | Replies : 0


 

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