My friend "Kay" has two small children. Her first, was diagnosed with mild autism, SPD, therefore eating disorders, and the list goes on. After first I pitied her, but soon it became evident from her extremely detailed FaceBook posts that the child had no problem eating and playing and being normal with the multiple therapists (occupational therapists, feeding therapists, speech therapists), but wouldn't eat or behave at home. I thought it she was simply overreacting to normal "child" things but that the therapists would help.
Then, she had her second child. She claimed that Baby was choking/retching/spitting up/aspirating/had reflux and not getting enough food down. She was diagnosed with failure to thrive because of how low her weight had gotten. Baby never choked or retched while she was in the hospital. Kay had to take a video to prove to the staff that it was even happening. Baby was placed on a feeding tube, which, many of you may know, comes with an exponential number of problems. The tube would get clogged and the machine would beep all night, or she would get reflux from being fed too much, etc etc. She is now about 18 months old and has already had at least 3 different feeding tubes.
Because none of the doctors have ever found anything wrong with her (beyond symptoms of the mystery missing "main" diagnoses), they discharge her. So Kay will go to a new group of specialists out of state, who also don't find anything. Baby has had multiple genetic tests which have all come back negative. She's had dozens of procedures and surgeries that I can't even enumerate here. All negative. There are pictures of her looking healthy, eating real food, and walking. As she grows, the problems evolve. She was put in orthodics to correct something wrong with her ankles. Kay says that she has "low muscle tone" on one side of her body and has problems staying balanced (she's not even 2...I don't know a 2 year old that I would say has good balance). She claims that there is "undigested food" in her diaper. The list goes on. Still no diagnoses, still keeps getting discharged.
The family lives several states away and we are not close friends. My heart can't bear reading her stories, so I have unfollowed her posts. I'm very concerned for these kids, but not sure that they are in any real physical danger, or if it's my place to say something when there are already so many professionals involved, or even who to call if I did. Do you think this is actually MbP? What should I do?