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misdiagnosed schizophrenia.. really aspergers

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misdiagnosed schizophrenia.. really aspergers

Postby misdiagnosed » Sun May 16, 2010 7:19 pm

Has anyone ever been misdiagnosed schizophrenia when they were really aspergers?
Been wrongly sectioned and recieved unnessecary medication?
would be great to share my story with someone who understands!
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Re: misdiagnosed schizophrenia.. really aspergers

Postby Brains_&_Burgers » Sun May 16, 2010 7:51 pm

no doubt misdiagnoses happen all the time, for many different reasons i would guess. what makes you think you have been misdiagnosed?
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Re: misdiagnosed schizophrenia.. really aspergers

Postby Chucky » Sun May 16, 2010 7:56 pm

It is possible to have a diagnoses reversed. If you firmly believ that you do'nt have schizophrenia, then relay this back to the doctor who diagnosed you. Be systematic and logical about it though. I mean, that doctor will assume that he knows you best and that any objection you make is nonsense. You have to convince him that he has made an error. Look up the official symptoms of Asperger's and Schizophrenia, print them off, and put ticks beside the ones you have. THen, give these to the doctor to 'mull' over.

What might have happened too is that you did not tell him everything, and that the diagnosis he made was actually correct based on what you told him.

Where have you been sectioned?; and what medication are you taking?

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Re: misdiagnosed schizophrenia.. really aspergers

Postby TNSe » Sun May 16, 2010 8:56 pm

Considering this article, I would expect it to be hard to get misdiagnosed with Schizophrenia if you truly are high functioning Autistic. But do what Chucky suggested.
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Re: misdiagnosed schizophrenia.. really aspergers

Postby Chucky » Sun May 16, 2010 9:04 pm

Nice article, TNSe. In it, they make a reference to copy-number variants (CNVs). These are what i am currently researching in my PhD. What I have found so far has surprised me, as I have found that some genes which are affected by CNVs are related to Autism (but I'm looking at DNA from cancer tissue).

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Re: misdiagnosed schizophrenia.. really aspergers

Postby misdiagnosed » Sun May 16, 2010 10:55 pm

First of all thankyou all for the replys.
I myself have not been diagnosed but my brother (D) was.
From a young age he was different, really quiet, shy, lack of confidence, OCD and tics,etc..
As he grew older, age 8/9 he wouldnt play with friends after school, used to make up excuses and even send my mum to door for him. On the odd occasion he would play with friends but only on his computer games. (Xbox etc..) this was his only real interest.
We believed he was agrophobic, my mum never took him to the GP as she was exactly the same from a youngage so thought this was normal behaviour.
At age 18 D stated seeing someone from EIT as he couldnt maintain a job due to his agrophobic state.
At this point he became interested in politics, and said to his worker that when he was 70 and in an old peoples home that he may commit a terrorist attack.
EIT contacted police and D was sectioned immediately!
D was always very childish and had a strange sense of humour.
D was sedated, diagnosed schizophrenia, then was forced antipsychotic drugs. within days after he was hallucinating and hearing voices, even more so if he skipped a day of medication, he never suffered these symptoms until the medication started!
After months of to and fro'in from the unit, D was more depressed, especially as he was people phobic and was being forced to socialise with staff/patients.his medication was been swapped and changed due to his side effects, he wasnt himself anymore.
In the end D said to staff that if he was not discharged at his next formal meeting that he would escape and lay on the railway tracks.. Unfortunately staff did not believe his threats so D did just that.
At D's inquest it was mentioned by doctor that he was been assessed for aspergers 2 weeks before he died.
Me and my mum have looked this up and can not believe how nearly every symptom is D, spot on!
We have also looked back at home vid's and noticed even more symptoms. coordination. etc..always asking to go home on every video clip. we have now notified our solicitor who is looking deeper in to this,
Last edited by misdiagnosed on Sun May 16, 2010 11:42 pm, edited 1 time in total.
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Re: misdiagnosed schizophrenia.. really aspergers

Postby misdiagnosed » Sun May 16, 2010 11:01 pm

I am very sure D was aspergers all along, his bizarre thoughts, childish behaviour were misunderstood as delusions.
Myself and my mum seem to fit in with all of the symptoms but not as intense as D's.
Its such a shame that they never assessed him for aspergers sooner, and that the family were not informed of this assesement nor were we invited! especially as he was supposedly in an impaired state of mind.
we had never even heard of the word aspergers until his inquest
Last edited by misdiagnosed on Sun May 16, 2010 11:45 pm, edited 2 times in total.
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Re: misdiagnosed schizophrenia.. really aspergers

Postby misdiagnosed » Sun May 16, 2010 11:11 pm

Would like to hear if anyone has a similar story if they have, or know anyone who has been misdiagnosed.
Or if anyone has had a bad reaction to antipsychotics. (hallucinating)
Any advice would be great as i feel im going out of my mind looking for answers.
This would be much appreciated!
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Re: misdiagnosed schizophrenia.. really aspergers

Postby vickivicki » Mon May 17, 2010 6:41 am

I truly do not knopw how to respond but I am aware that not responding at all is the worst thing.
i am so sorry for the heartbreak and sorrow you and your family are going through. It does sound as thougfh your brother had aspergers and you are now living with the nightmare that all people who have AS loved ones fear most. You were[and still are] a wonderful sibling for not just ignoring the truth. As i said before, I don't know what to post, but i care.
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Re: misdiagnosed schizophrenia.. really aspergers

Postby Brains_&_Burgers » Mon May 17, 2010 7:31 am

Hello misdiagnosed.

I'm also so sorry to read about your brother, and am at a loss for words. I will say that I also know of someone else who was misdiagnosed with many things, including schizophrenia, before receiving an autism diagnosis at age 11. She is not asperger's though, and is 'low functioning' -- she never spoke until the age of 21 and now only has a few words.

Regardless of the information available, such as the article TNSe posted, sometimes doctors don't know a lot about autism or Asperger's and/or the patient has not given enough information to lead to a correct diagnosis. As one doctor said 'making a diagnosis is like peeling an onion'. Of course, I had no idea what he was on about - I guessed that he meant that making a diagnosis makes everyone want to cry... but when I asked him two weeks later what he meant by that, he said that there are many layers to a person's history and they all have to be peeled away in order to discover what is the core issue.

I am truly sorry for you and your family's loss. I hope you find the answers you are looking for. What sort of result are you striving for with this?
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