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Concern about 13 y.o. son - Long post

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Re: Concern about 13 y.o. son - Long post

Postby Quark » Thu Oct 22, 2009 9:22 pm

Phoe wrote:I seriously struggle to wipe my own ass

Ouch.
Sir Isaac Newton wrote:“I can calculate the motion of heavenly bodies, but not the madness of people.”
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Re: Concern about 13 y.o. son - Long post

Postby phoe » Thu Oct 22, 2009 10:53 pm

Blunt but true, sadly... On the bright side, i've managed so far, but it's with tears to my eyes with the pain, and right at the limit of what I could do movement-wise...

The last time it was bad, I had a Butrans patch and I was taking several dihydrocodeine, but it wasn't touching the pain at all.

I was drinking pints of bacardi and coke on top of that lot in an attempt to get any sort of relief, which thankfully after a couple, it did help a little :-}

I'm not normally much of a drinker, and needing this level of medication and "additional" alcoholic relief is a worry for me...

I seriously couldn't move enough to enable me to get into a taxi to the hospital that week !
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Re: Concern about 13 y.o. son - Long post

Postby Quark » Fri Oct 23, 2009 2:24 am

Yah, seeing as I'm only 15, I'm not much of a drinker either. I've had one sip of red wine in the past... oh... 15 years :P

Chucky: I'm not pissed at you. Look at my signature when I update it.
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Re: Concern about 13 y.o. son - Long post

Postby Chucky » Fri Oct 23, 2009 9:09 pm

phoe do you have a chronic illness or something? I have terrible trouble with my colon occasionally. Sometimes it vcan be in so much pain that I grimace in public. My doc even prescribed me painkillers to take whenever it happens because she knows damn well how painful it can be. She's a gastroenterologist.
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Re: Concern about 13 y.o. son - Long post

Postby phoe » Fri Oct 23, 2009 10:00 pm

I suppose my back pain could be described as chronic - but it can vary in where it actually hurts. The main problem is in the base of my spine - spondylolithic spondylolisthesis (apparently), thickening and schlerosis of the facet joints, and a diseased disc. I start to hurt if i'm on my feet for more than a few minutes, but most of the time I can manage by sitting down for a while. When it goes (bad), it's as though the disc has popped out of place and is directly hitting nerves, so the slightest movement is agonising. I used to get a lot of "referred" pain in my right thigh, but while I still get it occasionally, it's not that frequent now. I still have trouble driving for more than 30 minutes at a time when otherwise "mobile", as it can hurt to lift my right leg to accelerate or brake.

To complicate things, that's not the end of the story :-(

I have a similar problem right at the bottom of my shoulder blades - it was present when I first saw a "specialist" with my lower back, but they refused to look at it at all (!) - I get a lot of aching generally there (it's "nagging" now), and get a similar pain to the "disc out of place" as above at times. My movement with either of these (middle or lower back) rates at least 9.5/10 on the "can't bear this" scale, and it has been known to last for several months (you can imagine how depressing that got)

Last but not least, my car was hit by a truck in 2001 and I suffered whiplash so badly that I literally couldn't get dressed for over two weeks - i've had ongoing neck pain since (varying in intensity) as well as having digits on either hand going completely numb for a few days at times.

Medication wise, I take 30mg dihydrocodeine as sparingly as possible (I can cope with the pain most of the time now, but I reach a point where i'd need to take several at once to counteract the pain). Previously i've taken 6 within about 6 hours on a bad day while in work (I was scared to take any more because I was as high as a kite by then and had to drive home via a motorway). In retrospect, I should not have been in work due to the risk to myself and others due to the medication, but was subject to workplace bullying by my supervisor at the time. "Aspie" communication issues meant I couldn't relay how bad I was, and I was threatened with disciplinary action for being off sick.

Butrans patches (often given to cancer patients) - i've had two strengths - 5ug and 10ug (these stay on for a week). The 5ug don't do anything for me unfortunately, but the 10ug is pretty good - it was the only time i'd got genuine relief from a painkiler. Sadly, it also renders my responses too slow to be able to drive to work safely.
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Re: Concern about 13 y.o. son - Long post

Postby Chucky » Sat Oct 24, 2009 8:47 pm

Hi,

I haven't heard of some of the terms you've used, but I can understand how inconvenient they could be for you. I have a chronic illness in relation to my gut that really affects me at times, but I won't go into that. I feel somewhat guilty in fact because I don't feel liike I know too much about you. Have you been around this Asperger's forum for long? THere was a recent influx of new members recently and I'm still trying to get familiar with all of the names.

I'm Kevin anyway, 26, and I'm Irish. I recently immigrated to the UK though.

Kevin
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Re: Concern about 13 y.o. son - Long post

Postby phoe » Sat Oct 24, 2009 9:06 pm

I'm Colin, aged 40, born and lived in the UK all my life (Liverpool area) - married, no kids, not sure what else there is to add :-}

I haven't been around these forums for long (my first post was the 26th September, not as long as I thought !), came across this one purely by chance after finding one on instructables.com for aspies, but there's very little traffic on there...

(feel a little awkward using my real name on forums though, in case it gets spotted by someone who can connect the dots to identify me)
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Re: Concern about 13 y.o. son - Long post

Postby Chucky » Sat Oct 24, 2009 10:47 pm

Oh, I was of the opinion that you are an American. I live on the opposite side of the UK from you, in York. I actually had an interview at the school of tropical medicine (part of the University of Liverpool) there in Liverpool a few months ago for a PhD, but I didn't get it. The city seems nice.. ...kind of nostalgic in a way. I was only there for a day, flying over from Dublin that morning and back again in the evening (I only moved to York last month). Oh, when I was there, I bought Gerry and the Pacemakers' greatest hits :)
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Re: Concern about 13 y.o. son - Long post

Postby phoe » Wed Oct 28, 2009 10:57 pm

My english isn't *that* bad is it ?
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Re: Concern about 13 y.o. son - Long post

Postby Chucky » Wed Oct 28, 2009 11:12 pm

Who ever suggested that your english is bad dude?
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